March 2009
hi i had a craniotomy and starting this coming monday i am having 9 blasts of whole brain radiation. i havent a clue what to expect or what the after effects might be. can anyone enlighten me please. when i asked my oncologist he just mumbled something about a mask. thanks
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March 2009
after many months of chemo i didnt have a single hair anywhere on my head or body. the worst was my loss of eyelashes and eyebrows. i was pretty grey before the chemo. when it did grow back it was darker and with NO GREY HAIR. i am about to undergo radiotherapy...i wonder what color it will grow back, probably red hee hee
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March 2009
hi there i had a secondary tumor removed on 20th October the cancer came from outer space...oops my bladder, well if you dont laugh you will cry. i know that strictly speaking its not brain cancer but it is a cancer and it does effect the brain, it was in the left occipital lobe and was successfully removed. now the fun begins. 9 blasts of radiation to make my complexion glowing and more chemo (taxol and carboplatinum). i dont know why im getting chemo as i understood that chemo couldnt get to the brain.
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March 2009
hi i have had 15 rounds of chemo. 6 with cisplatinum and Gemzar and 9 with carboplatinum and taxol. my last chemo was in march 2008. i had no response from the cisplatinum/gemzar and i had a 100% response the taxol/carboplat regimen. the long term/permanent effects are from the cisplatinum are neuropathy (no smell or taste and numbness in my hands and feet) just this week i discussed this with my oncologist and he says its probably permanent. i must add that a secondary tumor was discovered in the left occipital lobe of my brain. i had a craniotomy on 20 october and the tumor was completely removed. i am having radiation and chemo (again!!) starting this coming monday. the cancer had also previously metastasized in my liver and lung. the primary cancer was in my bladder.
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February 2009
hi wazza reading your posts, you seem to have been through the wars yourself. i hear that that type of operation is very painful. im lucky that i have had little to no pain at all. when i had the craniotomy i dont recall getting a single injection except a blood test or two, (i freak out at the sight of a needle). the worst part was the catheter aaaargh. i also had a catheter when they did a cystoscopy in 2007 it was in for 9 days and boy was it sore when they removed it. i still cringe thinking about it. i havent started the whole brain radiation yet i get zapped this coming monday. my oncologist wants me to have a course of chemo as well aaaaargh i had taxol and carboplatinum last time and as lousy as the side effects are, it was very effective. i had a full response. like they say what doesnt kill us makes us stronger, anyway cancer is just a word, not a sentence. im sending you good vibes
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February 2009
1 Kudo
i am a 49 year old male and was diagnosed with bladder cancer (transitional cell carcinoma) 2 years ago, my urologist was goiing to remove my bladder and sent me for a ct scan first and thats when it was found to have spread to my liver. i had a liver biopsy and it was confirmed to have metastasised from the bladder to my liver, they also found a spot on my lung. i went on chemo and the urologist decided not to take my bladder out. 18 chemos later i was found to be in remission. i had my last ct in August and was once again found to be in remission. On Oct 1st 2008 i went to work and found i could not type anything as i couldnt find the keys on the keyboard. i got in my car and drove to my oncologists offices. on ther way i was stopped by the police as i was driving with my door wide open and i only had one shoe on. they rushed me off to the oncos office. i was admitted to hospital and had a brain scan where they found a 50mm tumor on my brain. I had a craniotomy on 20th October 2008 and the tumor was complely removed. i am now recovering at home and am getting stronger every day. I am going for 9 blasts of radiotherapy starting on monday. they biopsied the tumor and it was a secondary tumor. the primary cancer being bladder cancer. who would have even guessed. i feel i have been truly blessed and thank my lucky stars. it could have been much worse.
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