Hey there Ibanez_Blazer. Sorry to hear about your situation, good luck with your treatment. I went to see a GIST specialist in Melbourne last week, his name is Dr. Jayesh Desai, you should go see him if you get a chance. Let us know how you go tomorrow, all the best! ... View more

Hello again gister. My tumour has spread to the liver so surgery is not an option unfortunately. Hoping 400mg can get the job done! I haven't really had any side effects yet thankfully. Sorry to hear about your tumour progression, all the best with your new treatment and next scan. 🙂 ... View more

G'day there, I'm 32 and have recently been diagnosed with GIST. The tumour has spread to my liver, so i can't have surgery. I'm on Glivec 400mg at the moment. Hope you're doing well now. ... View more

Hi, I have GIST also. I'm 32. Hope you're doing ok! ... View more

Hi there, I was also diagnosed with GIST a few weeks ago. I'm 32 and have just started treatment, Glivec 400mg. It's shocking news hey? Good luck with it all! ... View more

Thanks Gabe. I'm having a CT scan in two months, hopefully that will show some good signs. My oncologist seems pretty confident! I haven't had many side effects either thankfully, just feel a bit off colour some days. Add me to your list of people Footie and Bill! Do you know why you're on 800mg? I'm only on 400mg. Have a good day, cheers. ... View more

I have a tumour on or around the stomach/bowel area. This has also spread to the liver, so surgery is no longer an option. I've just started on Glivec(imatinib). Thanks for replying. ... View more

Hey there, I was diagnosed with GIST about two weeks ago. ... View more