Dear Dunnc My advice if you are in constant pain is to get a second opinion. I had chest pain, some reflux and a cough that became more constant over 4 years. I was told it was reflux until the severity and frequency of the pain made me see another gastroenterologist who ordered an ultrasound before a planned colonoscopy & endoscopy. The US showed up something serious and the CT was done that day which showed a 6.5cm gist on my upper stomach that was pressing on the diaphragm. I had full surgery to remove it & symptoms went straight away but recovery took a few months. I was lucky to have it removed because the GIST had the KIT mutation making it resistant to the drugs. My first 6 months CT has shown a 3mm "cyst" in the liver. Has anyone had anything similar please? I have found the lack of information and advice on what to expect a real concern. My surgeon just said "surgery was enough- all good"
... View more
Hello again gister. My tumour has spread to the liver so surgery is not an option unfortunately. Hoping 400mg can get the job done! I haven't really had any side effects yet thankfully. Sorry to hear about your tumour progression, all the best with your new treatment and next scan. 🙂
... View more
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.