Hi Leanebillo Thanks for your reply and I hope your next round of chemo goes well. We were lucky that John didn't get the terrible side effects that I had prepared myself for. He was just tired and slept for a week. John's next round is on the 3rd Dec so I'll pay more attention to the drugs etc and let you know how it goes. More later..best wishes E xx. ... View more

Dear Wishing well, thank you for your detailed reply. I guess we just have to be grateful that John's was diagnosed so late in life. 36 seems awfully young to have to cope with this insidious disease. Our adult daughter applied to the compensation board in NSW and they were helpful and came to interview us just last week. it might be worth while for you simply because, hopefully, you have many more years ahead of you. Have a concession card and a disabled sticker for the car too. Makes life a bit easier. I have a my meltdown moments but have good support and so far have been treated quite well by all medical staff. I must say one does feel a bit like a parcel being handed around from Dr to Dr. In our case it was just incredible to go from being a fit and healthy 73, still sailing across oceans, to having reduced lung capacity and the dreadful malaise that comes with the chemo. It has only been 6 or 7 weeks since the diagnosis so I am not even sure which drugs they gave him. Will know more after this week with two Drs appt and then the next round on the 3rd Dec. Thanks for your support and will keep in touch. Best wishes. Elise. ... View more

Wishing wll. My husband has been diagnosed with mesothelioma. Would appreciate your sharing any information and treatment as my situation is same as Makepeace Thank you Elise ... View more

Hi Leannebillo that is good to read....I wonder how old he is? seems the younger the more chance .... how often does he have chemo? Elise. ... View more

My husband is 73 was diagnosed with mesothelioma and has just had his first round of chemo to try to buy some time, At his age the chances of having a year or two seem grim. Had his right lung drained and packed with talcum. He slept for a week but didn't have any other reactions to chemo. Had a rash but Dr suggested antihistamines which seemed to help. have just joined and can't find any other people with mesothelioma. Elise. ... View more