January 2014
Winnie is home and doing well. The vets said he came through like a champ. I know he's on a pain patch but you can already tell he's going to be better off. He's moving well an can still wag his tail. Dogs are amazing. It did my heart good to see the little guy come through. See he had to be tough, we made the choice for him, we chose for him to fight, how as humans, who have a choice,do anything else but fight. I'm the first to admit I'm tired. But we all must keep fighting. I'm sick of being sick, and like I said we have a choice, but the alternative is unacceptable.
Lange
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January 2014
This cancer thing won't let go of my family. As I've posted I'm stage IV adrenal cancer. Now my English Bulldog has been diagnosed with a type of melanoma that attacks the bones. He's already had one operation to remove part of his rear foot, but at this moment he is in surgery to remove his whole left hind quarter . The Vet said this aggressive approach should stop it for an extended period of time. He,s already 5 and bullies don't live much past ten on average, but my dogs have always been long lived. We love them like children. At present I have one chocolate. Lab, an old girl of about 12 and a set of English Setter twin boys 4 years old. They were my bird dogs before I got sick. Now they are a little on the heavy side and taken to long knaps in the sun. They still get a run in once in awhile. Then there is my loving English bulldog Winston Tank Churchill II or as we call him "Winnie" If you want a dog that wants nothing more than to be with you and have you love him he's your man. He doesn't mind well, very obstinate ,can't swim( with out his life vest) and claims all dog toys as his own. When he's sick of them then the other dogs can play with them too. But he is the ultimate companion,especially if you like sleeping for about 20 out of 24 hours a day.
The vet said he'll be fine with only three legs considering bullies carry 80% of their weight on their front end. It's not that, it's just this cancer that we all have is the devil itself,unrelenting, brutal.
How do you answer your teenage daughter when she comes to you in tears wondering why? And when is it all going to stop. My little perfect family of four, plus pets, has turned into a never ending battle against cancer.
Ok I'm vented now,
Lange
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December 2013
I know exactly how you feel it's been just over a year and a half from my diagnosis. That's about 3months longer than the average. I'm tired. But I'm young 46 people keep telling me I'm young, that I have strength, they just don't understand the chronic fatigue and pain,both from various treatments and the disease itself.
So I'm not going to give you some "come on you can do it " speech. I just want you to know that there are others of us out here, and we do understand what you going through, and we know it's hard. You are not alone.
Lange
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December 2013
It's not the long term results of this illness which bring me down each day it's the day by day stuff. I know it wll take me in the end, o.k. Got that.
How do you survive the the hour by hour stuff, the day by day stuff and keep going? It is in my face 24/7.
I pray, and receive comfort. Than an hour later I'm down again. It's the day to day that is destroying me.
What do you do?
Lange
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December 2013
I just found out I'm eligible for a clinical trial in Bethesda Maryland, phase I -2 it is for a drug that is very new and the main reason for the study is to accumulate information on side effects, however it has the possibility of shrinking my tumors. It lasts four months, of which about six weeks of that four months I would be away from home. I have about a year left as I sit right now. I know I have to talk to all my docs about this but how do you know if you should do it? On the one hand I may just be setting myself up for four months of Hell, and still pass away in a year. Or this may be something that gives me more time.
I've already had four operations, about a half a dozen procedures, chemo, chemo drugs and am currently having radiation, all in the past year and a half. A lot of people around me are saying " go for it " but they have not fought the battles I have. My wife would support me either way, she has been by my side through it all.
I know everyone is different, but I have to finish radiation before they would let me start, so I am taking that time to get as much info and opinions as I can.
I know it's hard, but please tell me your opinion on what you would do.
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December 2013
I wrote a thing on adrenal cancer but it doesn't show this says I started this topic but my post does not show . What am I doing wrong?
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December 2013
I know, I know, I know especially about the "wanna swap" comment. It goes through my head all the time. It's not easy and I carry certain amount of guilt because I have shut people down that were complaining. I have about 12 months myself. My mind is swimming how do I spend them? This may sound selfish but I understand the swimming head from drugs the lost feeling, but this is your time. I have beautiful family. I could not do it with out them my wife has lived every minute of this horror show with me. My two teenage daughters have seen me break down for no reason, the same dad they thought could do anything. So my advice is yes, it's ok to be selfish and let the hurt show but make sure you save your energy to guard those people you really love. They are the few you need to concentrate on,along with yourself. Everyone else will just have to put up with what you can give them, unless they "Wanna swap"
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December 2013
I'm not sure if this is the right place to post this or not. I'm looking for someone else with adrenal cortical carcinoma. There are not that many of us out there. So......kind I've been looking around haven't found anyone yet. I'm stage 4. I don't want to have a big whine fest, I just want to talk to someone who is like me. Like I said I have never met someone with the same diagnosis
Winston Churchill, " Never, Never, Never Quit."
I survive by this quote, The first thing I asked my first doc, their have been many, as I'm sure with all of you, will I have a chance to fight? She said, Yes. Little did I know what that would entail.
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December 2013
Wow I know my diagnosis was devastating. Why would anyone want to go down this road. I have to say as someone who fights everyday I take offense if she is lying. The diagnosis of cancer destroys people and their loved ones I really hope the is an explanation.....for you sake. Be strong, know Jesus is with you.
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