Nice to hear from you and I am glad you are travelling well. I have now finished my chemo and radiation, I was very ill with the chemo and was in ICU for about a month. I am now sporting a cool hairdo (according to my two boys) and my last biopsy showed no cancer and a lot of scar tissue. You are so right about the changes to everyday life and I am pleased to be gaining my weight back, slowly. I was diagnosed in July and am fully aware of the long road ahead, I have another biopsy in late January. I have been told that my cancer has a habit of returning and so I take each day as it comes and am grateful for the time I spend with my family. Being a single mum I am keen to get back to work though! Stay well everyone. ... View more

Hi again I also have an appointment with my surgeon to see if there is any residual cancer and my options if there is. Everyone seems positive that it is all gone so I will just wait and see. Great to hear you are coming out the other side also. Wow, what a journey it has been, and yes, not ever quite over. My boys have been brilliant and are even used to me walking around the house with my bald head. I am now looking forward to going back to work although I will need to build myself up and get more energy. Take care and good luck with everything.! ... View more

Hi I have finally been released from hospital !!! I went in on the commencement of my final chemo and its just as well I did. The chemo really attacked my body and I had a terrible reaction. I was in the ward for a few days and thought I was fine, next thing I was hallucinating and craving water like mad They tied me to the bed in ICU and I was not a pleasant patient, or so I have been told. After 2 months of hell I finally began to come out the other end. I was lucky to make it and the worst was losing my mind a little. I remember the neuro-psychologist asking me to spell simple words backwoods and wondering why. I ended up in rehab and that was great. Like a luxury hotel! I still only weigh 39 kg's and need to do special exercises and eat up. I feel like it has all been a kind of nightmare and I get memories of the hallucinations coming all the time. It has been so long since I posted so I hope you are well, let me know how you are doing. Madmik ... View more

Hi Feeling pretty good and I have had a good week. I am a little nervous about going in tomorrow for my next chemo but happy to be going in to the hospital so they can monitor me. My dad came over today and he used the clippers to cut my remaining wispy hair off. It is a relief to get rid of it but feels funny and I got myself a cotton cap which feels good under the scarves. I think I might also look into getting a wig, they are pretty good nowadays I have heard. You seem to be having more chemo than me, or at least a different type. I hope you are going OK. My family are all going on a holiday once I have recovered a bit from treatment, then the doctors will test me to see if it is all gone. Positive thoughts!!!! Again hope you are doing well, hang in there. ... View more

Hi Glad to hear you all had a great get together, it really helps. I feel so much better than last week. The doctors have given me a strong pain killer so I can eat and stop losing weight. It is working well, I had my first real meal in 2 weeks and it was great. It was hard to have an appetite and not be able to eat.. Well, my hair seems to be doing the same thing as yours. It has got to the point, as you said, that just touching it seems to trigger a huge fallout. I am over finding it everywhere! This morning I pulled out all my cotton scarves and had fun trying different styles. Finally found a style I like and it is very comfortable, not itchy like the beanies. I did a fashion show for my boys who are very supportive, although from the looks on their faces they will need some time to get used to mum's new look. I am now beginning the second half of treatment, same as you, then on Mon 21 they are going to repeat the chemo as well as continue with radiation. They have decided to admit me into hospital for the chemo so they can monitor me closely. Nearly there !!! Cheers ... View more

Happy Birthday to your daughter, Mishy ! I am sure your family had a great time celebrating. Well, I am nearly halfway through my treatment. Yay! My mouth and lips have gotten much better but of course now the pain in my chest is very intense that even liquid is painful to swallow. Thank goodness there is some relief with pain medication. As my next chemo approaches I am getting rather scared as I know what to expect. My hair has decided to pull away at the slightest touch so for now I try not to push it. How are you going? hope all is well. ... View more

Hi Mishy Sorry to hear you had to go to hospital and that you are having a rough time of it. You are very brave and strong. I have just spent the 5th and 6th day of chemo and not so brave. They took out the infuser and the next two days I was very sick, couldn't get out of bed and needed help with everything. Now I am on the third day without the infuser and feel a little better. I find it hard to eat as my mouth is all chalky and I have a dodgy tummy. Oh well. Drinking lots of meal replacement drink. OK whinge over. I now just continue each day with radiation then the 5th week I go back on the chemo. I am not looking forward to it but it means I am near the end of treatment. How are you now.? We will get through, lets keep strong! madmik ... View more

Well now I am into my 2nd day of treatment, my chemo infusion will finish on the fourth day until the next lot. So far I have been ok although today I felt a little nauseous and could not finish my dinner. I knew it was coming but its hard to know that it will all get a lot worse before it gets better. No more whingeing for now, must take each day as it comes and keep a positive attitude whenever I can. Cheers Madmik ... View more

Hi i just found out I have esophageal cancer and I will start chemo and radiation therapy on Monday 23 June. I have read the other posts and I will have a Picc line with 4 days of continuous chemo as well as daily radiation therapy. I am soooo scared. I have had previous stomach surgery and so they told me that surgery is not an option. I am a single mum with two young boys and I guess I just need some support. Kim ... View more