About madmik

madmik

Hello, 2 years ago I was diagnosed with oesophageal cancer and thank goodness the chemotherapy and radiation got rid of it but not before nearly killing me. Got nearly 2 more years with my two boys aged 11 and 13. Thought it was over except for three monthly endoscopic tests. That was until 20 March this year when I was told to have a pet scan. There they found the thing was back, bigger and meaner than ever, My tumour is in my oesophagus and of course they can do nothing. I am terminal and have accepted it. I will die sooner than later according to all the doctors. I am 54 and asingle mum so my main concern are my boys who are now 14 and 16. Does anyone else out there have terminal as well. Is Mischa out there anywhere as after I wrote 'Real' as a blog we were in contact for a while. Really not sure how to use this site any more but would like to talk to someone who is in the same situation. I have just come home after being in palliative care and it is great to be back with my children. Although I have to have nurses and family here all the time. Madmik

madmik

Hi again I also have an appointment with my surgeon to see if there is any residual cancer and my options if there is. Everyone seems positive that it is all gone so I will just wait and see. Great to hear you are coming out the other side also. Wow, what a journey it has been, and yes, not ever quite over. My boys have been brilliant and are even used to me walking around the house with my bald head. I am now looking forward to going back to work although I will need to build myself up and get more energy. Take care and good luck with everything.!

kasianne

Hi Madmilk I had esophageal cancer two and a half years ago diagnosed nearly 3 years ago and I was 45 at the time and now 48 and in remission. I was a little luckier than you i that I was able to have surgery after chemo so my stomach has been relocated in my chest after the removal of 10cms of my esophagus, the previously affected bit in the hope it will prevent a re occurrence. The chemo had eradicated the cancer completely by the time I ad surgery so fingers crossed for you that your treatment works as successfully for you. It took them a while to diagnose me as i am female so it was definitely not a cancer they expected me to have. Take care Kas

madmik

I was very open and up front with my boys, I have not got a husband or partner as he left when my boys where babies. I think it is important to be honest with your closest even though it is very hard. I needed them and they are incredible. Don't underestimate their love and support.

christinebrown3

It's now been 8 weeks that I had my Oesophagectomy lucky for me the cancer hadn't formed and this operation was so that in the future it didn't turn into cancer the operation wasn't very pleasant but have make it through. The worst is eating I find dairy is the worst and try to avoid I'm now on lactose milk and products that are the same only one hitch so far is that I had scar tissue grow over the opening which was something I wasn't aware of it has now been fixed so I am eating foods again when that happened I could only have fluids. I do feel for those that had to have chemo and radiation as that must have been awful to have gone through.

madmik

Hi i just found out I have esophageal cancer and I will start chemo and radiation therapy on Monday 23 June. I have read the other posts and I will have a Picc line with 4 days of continuous chemo as well as daily radiation therapy. I am soooo scared. I have had previous stomach surgery and so they told me that surgery is not an option. I am a single mum with two young boys and I guess I just need some support. Kim

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