Hi Tash, my husband was diagnosed with Follicular Lymphoma in 2011. He had long term immunosuppression before then, for eczema, but at that stage his Oncologist was unwilling to draw a direct causal link. My husband had 6 months of chemotherapy (Bendemustine and Retuxamab, he was part of the BRIGHT study), and is now doing really well (He's going to cycle up Mount Baw Baw tomorrow- for fun?!!?!!) Good luck to you and your son- let us know how he goes. This is a great place to come for support, venting and asking questions. love and hugs, Emily ... View more

My son is 18 and has primary central nervous system lymphoma and has one large tumour in his left hemisphere. He is a transplant recipient of a kidney at age 2 so the PCNSL is a direct result of long term immunosuppression. he is about to have his 1st scan after 3 doses of chemo to see is its working. we have been told that if its not working we don't have any more options for treatment and will be looking at end of life palliative care....very nervous to get the scan done and results. ... View more