October 2018
Hi Katy I know what you are going through having losing my mum to PC Nov last year. KJ is right bloating is normal as ascites starts to develop. Mum did have her tummy drained twice and that did help with pain, but it wasn't long after that things went down hill and next thing we knew she was in pallative care. It's all very sad to see but from my experience you need to be strong for your mum and be there with her as much as you can, it is hard on us too but we have time after to reflect. The last thing you don't want is any regrets, be with her and support her is the best thing you can do now. Once Chemo finished for mum she was home and we had nurses come home and make sure she was up to date with the latest meds etc... I feel for you and your family having been through the same thing not so long ago. Be strong for your Mum she needs you 😉
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February 2017
Sorry just realised your post was May 2009. but someone had replied a few days ago, resurrecting it. I hope you're still with us .. it's been almost 8 years .. I hope you're still with us, but if you're not.. I hope you're somewhere better.
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February 2017
Update: It was mum's bday yesterday and the start of her second cycle of treatment... So far she is going ok, the odd pains but not too bad. She has three cycles then we will know her fate after the third cycle (after re-doing CT Scans). She has lost all her hair now and is still fighting with food, having only Ensure drinks at night and during the day whatever she can keep down. Both dad and myself are doing everything we can to keep her thinking positive and to stay strong ;). I haven't found anyone who has had a similar experience to what mum has gone through, not too sure if mum is a unquie case...
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November 2016
Thanks for sharing your story, mum was diagnosed in October this year 2016. Within one month she was developing Jaundice and had back pain, nausea and was not eating well. She was set to have a Whipple procedure last friday but they saw that the tumour had grown more than 4cm from when she had her last scan. So they did two bypasses one to fix the jaundice and one to assist with digestion. She just arrived back home two days ago and is still abit nauseated and has troubles eating (my guess is she is still recovering from the operation). The doctors have advised she do strong Chemotherapy (i am not sure what this involves yet), to shrink the tumour to then be able to complete the Whipple procedure Feb 2017. My worry is will the tumour spread before she starts chemo which is a month away. Any advice would be great. I am happy to also provide support and share my knowledge of what we have experienced with anyone going through the same diagnosis.
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