Dear @Kaori Hi I’m doing fine, still - I have returned to nursing - my other life passion - although I tend to avoid the high pressure ED and psychiatry I am able to deliver health care in Aged Care settings My partner retains a fear I will relapse, but there is no indication to suggest this may happen We travel extensively in our roles in rural and remote areas of WA Sometimes I live the life of a boys dream, looking at the world With a brand new insight and a curiosity to simple things - hey my dog and I swam in the Fitzroy river, chasing freshies, brolgas, kites and eagles without fear I will slide into heaven and thank the universe for a great life Peace be with you Rob
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My Consultant (at the time) gave me three to six weeks to live. He delivered this message as he was leaving the ward room. this news had caused two responses. Firstly, for my soul mate it was the end and she did everything she could in preparation for my death. Her anticipatory grief was overpowering and consuming. Her response was to prepare palliation and to give me a pain-free exit. My response was like the doctor had waved the red flag at a bull and from that point I engaged every resourse i had to defy this prediction. faith is important, self belief paramount, i had far too many goals to achieve to be robbed by this 'know it all". I have recovered, but the delivery of the prognosis still stings my partner's thoughts. She remains afraid to love me with the intimacy of the past. She remains with the concept that that I am cancer, bless she remains very protective. nearly fifteen months later she is slowly coming to believe that I am alive and that each day must be seized and we should live life to the max. We have been blessed to carry on. F U Cancer
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An amazing time to find out who your real friends are,
My partner's kids have been amazing. When I was receiving chemo in Perth and was looking pretty dodgy (the consultants words were 3 -4 weeks) they jumped jets and flew from Hong Kong and Sydney to support me and their mum. My own son offered to send me some socks. My mates were close visiting frequently and again one flew down from Broome for 24 hrs to be supportive. My soul mate did everything, including resuscitating me when I collapsed with hypotension, low iron and dehydration. Fortunately that was the day after my last dose of chemo, because my consultant haematologist had left the country for a holiday without allocating an interim consultant.
My partner was able to access another Haematologist through the kindness of Professor Mark Hertzberg, so I was reviewed by Professor David Joske at Charlies in Perth. His first action was to PET scan and to then tell me the cancer (NH follicular lymphoma/large B cell lymphoma) was gone. he recommended that I go "live life", Since then I have done my best to do that. working hard to recondition my physical body through healthy lifestyle activities.
Noone told me about the psychological scars. I thank providence for the patience of my wife for putting up with me, Waring between anger and submission.
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.