It was a combination of my oncologist, homeopathy, Chinese medicine doctor, Professor Avni Sali  ... View more

An amazing story as the same bloody thing happened to me! I went in for a biopsy and was let out 4 days later. I asked the surgeon how long should I wait before flying and told to wait a week. I hopped on a plane from Melb to Sydney to go and get a second opinion from Charlie Teo. While in Sydney I developed a pain in my groin. I flew home the following day and the pain gradually worsened over the next week. Eventually, I was struggling to walk up the 3 stories of stairs into my unit, realised my leg was very swollen and turning blue. My mother drove me to casualty, they took one look at me and admitted me. Ultrasound confirmed a major clot in my leg from groin to ankle. 2 weeks in Hospital on Hyperon and Warfrin. I now have to wear a compression stocking below the knee as all the one-way valves in the main vein are buggered due to the remaining scar tissue.   Despite my advising of a family history of lower leg clots, I received no warning or advice when discharged from my biopsy op. Additionally, a nurse tried to give me the morphine meant for the guy in the next room, got me out of bed to have a shower the first morning despite the doctor saying that I must remain in bed, refusing to give me any food because the whiteboard had not been updated post op for 3 days... etc .. etc..   All in a private hospital! I work in mining and most of the safety incidents we have are human error related. It's no different in the hospital. I found the private system pretty disjointed in terms of patient care with some silly decisions made by the hospital physicians at times.    My advice, always do your own research, write out questions before you see your specialist, If you want to do complimentary therapy, do tell your oncologist and if you are in hospital try and have a family member present to keep an eye on what's happening with medication as when in intense pain your brain does not work too well due to the Endone they give you.  ... View more

As a footnote, I also found that getting educated about helped me a lot. There is a wealth of information on line about Brian Tumour treatment. I am an engineer by background so had enough of a science education to readily understand what I found. I also attended the 10 day Gawler foundation residential retreat on living with cancer which I found tremendously useful in helping me detrmine the tratment I wanted to have. ... View more

Matthew where are you based? I am in Melbourne but do FIFO to QLD every second week.  ... View more

I was on a daily dose of temodal and about 6 months in my blood results became poor so I stopped for 2 weeks. I started daily Chinese herbs (traditional boiled herbs and strained fluid and I never had a problem with my bloods again. I think it was low platelets.    The acupuncture helped me feel better too but was designed around immune support.  ... View more

I was diagnosed with 2 Grade 2(malignant) oligoastrocytoma brain tumours back in 2006. Both inoperable so I decided on radiation and chemotherapy. The initial estimate of life was 5 years. That was 13 years ago and I am still here. Tried a lot of complementary therapies along the way. Chinese herbs, apricot kernels, meditation, high dose Vit D3  etc.. etc..  I am in good health both mentally and physically with no seizures. Happy to answer any questions posed. I have worked full time since initial radiation treatment. 54 now and just having annual MRI and blood tests now.  ... View more

I had radiation and chemo 11 years ago for a pair of inoperable  malignant brain tumours Grade 2 Oligoastrocytomas. I am still going well with annual scans showing no change to the 2 inoperable tumours I had. They seem to be just fading away and showing less in scans  I still wake up at 2:30 am in the morning and wonder how long I will get before it comes back.Current trial data for the chemo I had suggests > 11 years mean survival (and mean is growing) so I am now entering the other side of the bell curve. I just keep telling myself that because I took a very unconventional approach to my treatment that I am special. I keep busy and my mind active and am pursuing life as if I never had a Brain Cancer at all. Hope for the best but plan for the worst. (So no going to African Gold Mines to work. 🙂  ... View more