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- About Nina6
Nina6
Occasional Contributor
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April 2018
May 2018
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April 2018
How are you going jenniferwang...I do hope you are coping with everything.....its a very sad journey....
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April 2018
April 2018
Go home. Go home.. from my point of view..you will live with that regret for ever if she dies and you werent there....you only have one Mum...and believe as soon as she sees you she will melt into your arms...Please take your sister with you...Best of luck to you and your family..
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April 2018
Oh...ifeel so sad for you..jenniferwang.. im sitting here today just so sad one of those days i cant stop crying....if you can just talk and talk leave no stone unturned...have no regrets.. just surround each other with love...lots of love to you .
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April 2018
April 2018
Thank you everyone for your support...i had to read up about MDS...How frustrating that would of been to get a Dr. to listen to you........My sons symptoms were the same as carpal tunnel syndrome. and that terrible fatigue that he put down to being a bit stressed....i too beat myself up about not getting second and third opinions...i think it is part of the grieving process...The What Ifs...
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April 2018
I m so sorry you have to go through this terrible..terrible journey jenniferwang ...no words can make it better...keep talking to the medical team ...asking questions...and keep venting on this forum...
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April 2018
3 Kudos
I am now at the stage when no one wants to talk to me about my son...if i do i cry ...the phone calls have stopped....life just goes on...
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April 2018
1 Kudo
Yes my Ben was 36 when diagnosed.. from the start they said he was terminal 3 months but.he got to 20 months..but we had a terrible journey with the care.. he acquired a hospital infection from the spinal operation so he never recovered from that... ...the immunotherapy was given too early ..because of the infection he couldnt tolerate it.. ..the nursing care was below standard there were several times i had to step in and tell them he was desperately ill and needed a doctor...one instance he was given too much fluid and became very swollen.....i just have so much anger .....
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