I lost my 32 year old son on the 20th of August- I understand how you are feeling as I feel the same! Our children are always our babies no matter how old they are. This is so wrong, my son is gone and life will never be the same- a huge part of me went with him. No parent should ever live this nightmare! ... View more

He is getting more upset and worried he is dying. Even though i say to him dont be, Be happy and spend happy days with me. Deep down i am hurting too. And i cry everyday without him seeing as i need to be strong for him. Today is another chemo to prolong his life and another doctor review. I dont know what to say to the doctor anymore. His vibe is saying he has given up too. How to be positive when doctor already given up before you reach the end. Very loss. ... View more

Hi Nina, sorry for your loss. I get your pain as I too worry my turn will come soon when my Husband pass. I cry daily worrying abt the after. Nina I am sending hugs to you.  ... View more

Hi Nina6,  i appreiciare that you took the time to read up about MDS as most poeple have never heard of it. Over the years  his tiredness was put down to the fact he was on so many pain killers for osteoarthritis in both hips. He had a hip replaced in 2014. I supposce i can spend the  rest of my life thinking of the what ifs.. but it will never bring him back. I try to remember the good times we had. Just so hard to adjust to this new chapter in my life. ... View more

To nina6,  Thankfully I was able to be with my husband till the end, and it was so hard to see the love of my life go through that. Everything happened so fast and I feel that there was so much left unsaid. It seems to be getting harder to cope with the loss as more time goes by. People keep asking me when I will return to work, keep telling me that it will get better with time, tell me that if there is anything they can do just ask. I don’t think most people know what to say and these seem to be automatic responses from everyone. It hard to hear  sometimes as all I really want is to have him here and that’s just not going to happen. Feeling lost , lonely, angry and sad all at the same time.  Thank you for your thoughts  ... View more