Hi, I went through a similar situation but on a smaller scale. Some people just don't know how to react and to be honest I would probably have been the same, looking from the outside. You just have to accept this and lead by example in the future. When I think of all the wonderful people who did make a real effort to support me, I know I have to reach out to others when they need it. Here in the Illawarra, I have met some incredible people. So my advice to all is join a support group, get involved and be open about it. Be proud of the fight you putting in. My prayers, love and best wishes to all of you. ... View more

Hi all, its interesting to find always find a thread call "newly diagnosed" on this site because its that very first moment when we find out what we have that all the questions suddenly arise and we embark on what is an incredible journey. Only us cancer people can know what that is like. I write today after a very long absence and just back from seeing my doctor for the first year checkup after remission. The news is all good and I very much wanted to share it with you, because again, only you can truly appreciate what this is like. For the record, i am a 47yo husband and father to two teens, diagnosed originally with NHL stage 4 and have undergone CHOP-R chemo. A tough journey indeed, both physically and mentally, but life has fortunately kicked on and now I value each and every day. My prayers, love and best wishes to all of you. You are a very special group. ... View more

wow what a story and what fighter you are. With this behind, you could take onthe world although I suspect like many of us, you may just want to enjoy life each day at a time. Thanks ... View more

Hi guys, anyone entering the relay for life, Illawarra section? would love to make contact if youre interested. ... View more

yes, cycle one under the belt. it was a combo of Mabthera and CHOP14. So far side effects are minimal. Some tell me that they accumulate with subsequent cycles, others that they are all pretty much the same? would like to hear from others on similar plan. ... View more

I'm set for chemo from next week and Im not sure at what stage does the hair fall out. Also it seems that everybody reacts differently, so when do you know what you feel is related to the chemo and when its another ailment.     ... View more

im going through a major regional hospital, and teh care so far has been very professional and caring. No issues there, but I still don't understand how the definitive diagnosis is made. thanks for replying, ... View more

Im on a CHOP14 and Mabthera cocktail. Only cycle 1 of 6 so far, but side-effects have been minimal. Doc says that many patients are the same. Anyone else have similar experience? does it accumulate or stay the same? ... View more

Hi Bleu Fox, I have not had the same but felt that I should reply to give you some guidance. First of all, you may not get much of a reply in this forum as its not as well supported as the other forums. Second, I can understand how you feel and my thoughts and prayers are with you. It can all become a bit much to take at the start and the look on a doctors face, a subtle comment etc can all be taken in the worst way. There is always always, ALWAYS hope. You now have to talk to a broad range of people and I would suggest you start with your oncologist and the people at the cancer centres. Do not rest with just one opinion, get informed and involved in your treatment. I wish you well and look forward to hearing how its going.         ... View more