Hello again, I had my scan and blood tests. The first scan that shows up RAI in the body showed that there is no thyroid tissue left in my body.   The results of the CT scan giving the 3D image of my neck and chest hadn't arrived before I left so that's another appointment.    The blood tests showed high TSH as expected but testing for thyroglobulin came back with "insufficent sample" and the Endcrinologist needs to investigate why they put that in.   So, looking good I think but thyroglobulin can only be made by thyroid tissue I'm told so don't know what will follow. in the meantime I will quietly celebrate the lack of thyroid tissue detected in the first scan as it is healthier to do that than worry about the Tg.   I asked about the eyesight but as usual he said "old age" Cheers mate I thought I was young and gorgeous.   My eyesight has suffered significant deterioration in a few short weeks. First, when I finished studying, 2nd with the 1st thyroidectomy when they took 5 little cancerous glands at the same time and I lost brain function, voice strength and felt quite battered and again after leaving off the thyroxine for these tests.   Are they going to do this ever again? Every year? 5 years?   This test period has been hard. It has cost me job opportunities (I tried to return to work after kids but couldn't get a foot in the door) and given me a very short temper as well as the symptoms of hypothyroidism. However, I think that other than the anxiety and insomnia, I was pretty healthy and that has stood me in good stead -so far anyway.   My husband wanted to lose weight a few years ago before the cancer and anounced we were going to do the 2 day fasting and 5 day normal eating. At least I think that's how it started - I had already stopped eating bread as I felt a little bloated on it and my weight was climbing slowly. Initially, I thought "Don't tell me what to do". But then I thought I'll give it a go. It was really hard for ten months and then I acclimbatised. I went down to 1 day fasting for maintenance but kept using his recipes and principles. Then I got a very physical temporary job and was losing too much so stopped.   I'll cut it short, later we did the 800 calorie diet. From this and the thyroid school (online website) I learned about gut health, inflammatory foods and deflammatory foods. I eat 3 meals a day, loads of fresh fruit and veg and I mean a lot, fish when allowed, lots of pulses, take fish oil when allowed, limit dairy and exercise loads when able. I usually maintain a steady weight. I started gradually losing a bit more than I wanted whilst hypothyroidy during this test period. I think without this, I would have suffered more than I have done. I have Hashimoto's too.   I hope this doesn't sound boasty -I am lucky in some ways that's all. I have a couple of friends with various thyroid issues -not cancer- who have a terrible time hypothyroidism and weight and nothing she does works. It is soul destroying.   And I know what kind of cancer it was now -papillary. ... View more

I don’t know the answer to your question, but perhaps you should try phoning the helpline.  ... View more

Thankyou, Kate. That leaflet on understanding cancer is clear and concise and very helpful. I will look at the tertroxin one later.   ... View more

I’m not surprised you’re so worried and with reason too. I think you posted in July but I would love to hear how things went. Survival rates are very high. I was diagnosed with thyroid cancer last year and had several treatments. First, removal of half my thyroid, then the rest of it and finishing with radioactive iodine in isolation. All this occurred within a few months. I have been fine and very active since on thyroxine. I generally eat very well and maintain a good weight. I told my children that I was going to have treatment and why - I tried to give an impression  of confidence in a successful outcome. I talked to them after I was told the good news and they said they were certain all would be well. Unfortunately, my Dad was visiting at the time so I had to tell him (senior citizen) and he was very worried - he had had the all clear from prostate, kidney and pancreatic cancer only months earlier and we lost my mother to breast cancer some years ago. I think I minimised his worry. Thyroid cancer is survivable. My point is that for me ,talking about it has been worthwhile because a secret gnawing away at you is no good for anyone. Best of luck to you. Wish I could have found this site at the time you first posted. ... View more