October 2021
Hi Wegotthis, Unusual name. Irish? You could have picked a later post. This one was too optimistic, obviously. Back then I was thinking I managed to prevent it spreading. Maybe this time around. I can suggest a cure for issues with telling things to your wife. Get her to sign up and follow your posts. My wife was a little bent out of shape if I posted something that I didn't tell her first. The reality is, when writing a post, if something pops into my head, I don't think about if my wife is already aware of it. She got over it eventually. She got bored of following my posts too. I realised I had accepted cancer too easily and I was ready to go if it came to it. It was a rude shock, that it wasn't acceptable to other people. It's easy to think me, me, me when you get cancer. I can honestly say that I have a new reason to live and it's to be here for the people who need me in their lives. The people who need you will probably cope less than you. It sucks when you are the sick one and have to be the strong one for others, if they can't be strong for you. Meh! Who ever said life was fair? It is funny when you are on the cancer bus. It's easy to talk to the other passengers about their cancer journey. It's easy to talk to the people who join you on your journey. There are going to be a whole lot of people who avoid you. It's hard to talk to someone about their pending death. I used to be an avoider. I didn't know what to say to people who had cancer. You can only talk about the weather so long before health comes up. I was worried about upsetting the sick person, when they probably had no issues with it. Not my finest display of friendship. I tend to keep my close circles up to date with my progress. I don't mind if they avoid me. It's annoying when everyone asks how I am. I do group updates every now and then. I try not to answer individuals when they ask. It gets too repetitive. And the story gets more dramatic every time I tell it. So I send group messages when I feel there's something new to say. I try to always include a joke, because I can't not laugh at it. It's a way to help stop them worrying so much. In general, I used to be the sort of person who would hide weaknesses. As a stupid man, I was looking be strong, smart, popular and successful. What can I say? I don't give a shit about that anymore. I have cancer. I might die from it. I might catch covid19 and die from that. A guy like me could even die from vanity cause I'm just soooo good looking. Was I trying to make a point here? Not sure. Just waffling I think. Anyhow. Just talk about it. Let people know you are okay to talk about it. Tell people you'll haunt them; or leave them out of the will if they piss you off. If they want to know who inherits the car, tell them you are getting buried in it. Beyond the lighter side of it, it might lead to some other serious conversions about how much you mean to others and how you'd like them to remember you. I didn't have those conversations with my Dad. I didn't know how to talk to him about his death before it happened. I don't want to take that opportunity away from my kids. I regret not asking him a lot of things that I'd like to know. Just remember, if you know there's a chance you'll die soon, you have time to prepare. It's when you don't expect it, you run the risk of people finding out what's in your browser history. Make sure you clear it out before palliative care. Take it easy and get some sleep. Cheers Phil
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October 2021
1 Kudo
Hi Been back on my feet for a week. Being walking daily. Aiming for optimal exercise and activity without overdoing it. Trying to make sure my lungs are working well and avoiding pneumonia. The CT scan showed some cloudiness in my lungs, so breathing has been my target. I have been trying to wean myself from strong pain killers, but it was too early, so I've had to start them up again. mainly because I did overdo it with being too active. In any case, just focussing on surgery recovery in the short term. Not had any new appointments made yet. Waiting to hear the results of my liver pathology. I hope you are well. cheers
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October 2021
1 Kudo
Hi Lampwork It's nice catching up with you again. I think was luck not sleeping. I was suffering some sleep apnea conditions with was unfortunate. and everytime I went to sleep , my oxygen saturation dropped and the alarms worked me up. I'm making up for it now. I've been up and walking around and been stretching my abs to move around. So I have more pain now. I'm off for a CT scan to look for potential blood clots. Just precautionary. i'll start solid food for lunch if they can find me a spare tray. Talk soon xo
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October 2021
2 Kudos
I just met with the surgeon. Everything went well. He is very happy. They'll unhook me soon and move me out of ICU. He's predicting I'll go home early. Having the laproscopy makes it so much better. I feel I could go home now.
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October 2021
3 Kudos
Well it's taken me about a moth, booking an appointment with the GP, getting a CT Scan, following up results with the GP and original surgeon, getting MRI and PET scan, meeting the new surgeon, getting bumped for my surgery date, then finally... being made cancer free. So this has all happened two months before my scheduled CT Scan for my oncologists which was in December. Therefore, I managed to rid myself of this thing three months early. As it was an aggressive little sod, I can't express my relief enough. So they have taken the left lobe of my liver. Segments one and two. I am also feeling fortunate because of the sucess of the laproscopy. Minimal wounds and speedier recovery. So preparing was scary. I was prepared for the worst. Putting the arterial lines in was unpleasant. Getting a local in my spine was unpleasant. I woke up feeling less hallucinogenic than previously. I was in practically no pain. Twelve hours later I'm having trouble sleeping, but generally feeling good. I want to get out of bed and walk around. As I'm in ICU, I'm attached to many lines and cables, so need to stay put for now. Anyway, a lot of fears and anxiety to get me to this point, but the treatment journey has been a breeze so far. Watch this space. I'm sure it won't stay rosie forever. Ciao
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September 2021
1 Kudo
Still early days. I haven't spoken to the oncologist yet this time around. He has spoken to the surgeon though. From their roshambo, the surgeon won first stab. I heard I can't be given the same chemo as before. That might be the case. I don't know. In any case, it nearly killed me last time. Hopefully a different one will be more effective and less dangerous.
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September 2021
2 Kudos
Hi I should be in hospital recovering from liver surgery. Instead, I'm at home, waiting an extra week. Covid patients ended up in ICU overnight, taking the bed reserved for me. Not too bad to be put back a week. I was giving the option of seeking chemo first. Delaying treatment a week is not a great option, but surgery before chemo seems the better option. I kind of had to roll my eyes because it was because of covid. With all the lockdown restrictions, covid's a bit of a boring conversation these days. Seems to be the cause of everyone's most predominant issues. Reflecting on it, I'm not sure why I wasn't angry or bitter. It's not like I can actually blame covid. There's no one I can really blame, so no point in being bitter. In saying that, being sent home in the middle of surgery day, wiped me out emotionally. I'd been mentally preparing for surgery for a week, which fell flat. Kind of like an anticlimax, but much more. It was awful. I think I was a bit relieved to not be going through it, but absolutely frightened about how this cancer could develop with an extra week of opportunity. A few days later and I'm moving on. I have a plan. I'm feeling more prepared earlier than last time. We shall see how I feel on Thursday when I front up to the hospital again.
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September 2021
2 Kudos
Just over two years ago, I joined this site. Diagnosed with colon cancer and treated as such. I thought it was early enough and the treatment was thorough enough, to make sure it didn't reappear. Ta-Da! So here we are again. Good news... The PET scan found only one tumour. It seems to be an early discovery. Markers had not shown up in my blood. I discovered it by accident, with a CT scan for a non-cancer-related reason. Bad news... It's aggressive cancer and I'm losing a chunk of my liver. And I'll have to do chemo again. I can add up more positives than negatives. Doesn't take away the brick wall I've been hit with. Liver surgery is big. Having gone through chemo already, second time around seems scarier. I have six sleeps before fronting up to the hospital for some slicing and dicing. Anyway... bring on round 2. Cheers everybody
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September 2020
Hey slump kicker, Are you in Florida or does your clinic just have a clever name? Being an AFL supporter, I assumed you came from Victoria, the home of Bad Covid19 behaviour. Not the USA, home of bad Covid 19 behaviour. I can brag. I'm allowed to travel to Queensland and South Australia now. Both of those states have a bad history, but at least they can shrug off any accusations that AFL are their fault. Rule number 1. If you know someone who likes AFL, they are probably from Victoria. They may have recently travelled to Victoria or been in close contact with someone from Victoria or spoken with someone from Victoria by email or Facebook. Being on cemo, best to avoid them, AFL fans probably all have Covid Cooties. Had it been known earlier that a little bit of Rugby love would have made them immune, they could have stayed healthy and enjoyed some real football. It is a good thing you can only put hearts on these posts. If there were cancer icon next to the heart icon so you can you don't like a post, I'm sure I'd be dead by the end of the day. Death by emoticon.
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