Thanks @Ashley_ccnsw  I will keep you posted ... View more

Hi Inoperable isn't treatable or incurable. It simply means they cannot currently operate to get it all. When you are diagnosed the first thought is crap just cut it out and get rid of it. Totally understandable. But think treatable. You are not dying. You can be treated. They may use chemo or other treatments to shrink the cancer (so surgery may be an option) or get rid of it. I get that it is an awful time. But honestly look to the positive. I have had my stage 4 grade 3 cancer recur 4 times and have been told i am terminal but am still here 10 years and counting (i was 37 when diagnosed with uterine cancer). The worst and best advice i got was "don't be a victim". Harsh but true. Be positive. It is a crap thing to happen, not fair etc etc but you are still here and there is hope.  ... View more

Hi Ness1983,   I'm also stage4 bowel&liver and been on chemo last 4 months (fortnightly) since diagnosed. Also been advised I'll be on chemo indefinitely which is inconsistent with what others are telling me. With each cycle, I feel the side-affects becoming more and more prominent especially hairloss/dry skin/facial rash/diarrhoea   Really curious about latest 2 break-throughs [1] US drug with 13 patients, trial 100% success rate with colon tumours vanishing [2] Closer to home StVincents sydney with a pill that has the same effect ... View more

I hope the walking is going well and you're well and truly back on your feet. By now your results should be back so I hope they were all ok. What are the next steps? More scans, or the dreaded "wait and see"? Any longer term side effects from the surgery? I hope everything is OK mate.   -s ... View more

Hi Wegotthis,   Unusual name. Irish?   You could have picked a later post. This one was too optimistic, obviously.  Back then I was thinking I managed to prevent it spreading. Maybe this time around.    I can suggest a cure for issues with telling things to your wife. Get her to sign up and follow your posts. My wife was a little bent out of shape if I posted something that I didn't tell her first. The reality is, when writing a post, if something pops into my head, I don't think about if my wife is already aware of it. She got over it eventually. She got bored of following my posts too.   I realised I had accepted cancer too easily and I was ready to go if it came to it. It was a rude shock, that it wasn't acceptable to other people. It's easy to think me, me, me when you get cancer. I can honestly say that I have a new reason to live and it's to be here for the people who need me in their lives. The people who need you will probably cope less than you. It sucks when you are the sick one and have to be the strong one for others, if they can't be strong for you. Meh! Who ever said life was fair?   It is funny when you are on the cancer bus. It's easy to talk to the other passengers about their cancer journey. It's easy to talk to the people who join you on your journey.  There are going to be a whole lot of people who avoid you. It's hard to talk to someone about their pending death. I used to be an avoider. I didn't know what to say to people who had cancer. You can only talk about the weather so long before health comes up. I was worried about upsetting the sick person, when they probably had no issues with it. Not my finest display of friendship.   I tend to keep my close circles up to date with my progress. I don't mind if they avoid me. It's annoying when everyone asks how I am. I do group updates every now and then. I try not to answer individuals when they ask. It gets too repetitive. And the story gets more dramatic every time I tell it. So I send group messages when I feel there's something new to say. I try to always include a joke, because I can't not laugh at it. It's a way to help stop them worrying so much.   In general, I used to be the sort of person who would hide weaknesses. As a stupid man, I was looking be strong, smart, popular and successful. What can I say? I don't give a shit about that anymore. I have cancer. I might die from it. I might catch covid19 and die from that. A guy like me could even die from vanity cause I'm just soooo good looking. Was I trying to make a point here? Not sure. Just waffling I think.   Anyhow. Just talk about it. Let people know you are okay to talk about it. Tell people you'll haunt them; or leave them out of the will if they piss you off. If they want to know who inherits the car, tell them you are getting buried in it. Beyond the lighter side of it, it might lead to some other serious conversions about how much you mean to others and how you'd like them to remember you. I didn't have those conversations with my Dad. I didn't know how to talk to him about his death before it happened.  I don't want to take that opportunity away from my kids. I regret not asking him a lot of things that I'd like to know.   Just remember, if you know there's a chance you'll die soon, you have time to prepare. It's when you don't expect it, you run the risk of people finding out what's in your browser history.  Make sure you clear it out before palliative care.   Take it easy and get some sleep.   Cheers   Phil   ... View more

Hi   Be strong and pray to Jesus and believe me trust him.  Jesus will cure you. ... View more

I am sorry to hear that. I am sure you will be fine. Just a piece of advice. I tried Ayurveda (Ancient Indian Medicine) to treat the symptoms of my mother's ductal carcinoma and it worked out great. I followed iahas.com for some great advice on Ayurvedic therapy and diet. You can take look at this option and I am sure Ayurveda will help you with your treatment. ... View more

Hello Carly, I dont supposed you are based on Sunshine Coast are you. I cannot find a Derm with experience/interest in chemotherapy skin problems..... Oncologist and GP cant suggest anyone, every other avenue I go down draws a blank and I would prefer to see someone with that experience.... thank you, Jackie ... View more

Hi Ashes    are you still there?  ... View more

Afternoon everyone!   I am just bumping this thread to check in and see how everyone is doing! We miss seeing your friendly faces about 😘   Hoping everyone and your families are doing well, it's been a challenging year or so for everyone.   -Kate Cancer Council Online Community Manager ... View more