Hi Mani, Only just read your post so I don't know where you are up to at the moment. Similar to you I had MDS in 2015 bought on by CHOP chemo for NHL back in 2003. Also had CLL (stage 4 in 2011). The BMT was haploidentical from adult son. They gave me 1 year without the transplant, it took many many months to organise and all MDS treatment was halted during this period, very uncertain about whether I would be accepted due to my age (then 64). Now 2+ years later still in recovery but getting stronger every day. I know we are all different and respond to things according to our makeup, they told me that the process was difficult and it was, very, very hard process. Not just physical, which was not easy going but mentally, We (my wife and I) thought that as I been though an awful lot before that it would be not that hard but it was. Would I do it again? in a heartbeat, would not be writing this now if I hadn't. I wanted to live but often thought of the alternative but no not yet.
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Hi Mani, That's such a hard choice to make. At the end of the day I suppose it comes down to quality of life vs length, & which one you prefer. I imagine the transplant will be just as damaging to you as last time & you must decide whether or not it's worth going through that again. Will having it done make the rest of your life worry, illness & pain free? If you don't have the transplant, what will the progression of the Myelodysplasia bring you? How much pain & discomfort will you be in towards the end of the 19 months? Do you want to go through everything it will bring? I wish you all the very best of whatever happens & whichever way you decide to procede. Budgie
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.