Hi there Ankrhealth, Thank you for your post and for providing information to our online community members. Unfortunately, your video link will be removed as it is not information, or research approved by Cancer Council.  Kind regards Susana ... View more

Hi Shaun, your reply is extremely interesting and a timely reminder to me that there are many people who are far worse off than me. I thank you very much for sharing such personal details.  I can see why you needed long time off work to manage your health.   I am somewhat paranoid that I am not "sick enough" from the treatment and that maybe that means they didn't do the radiation correctly. I will confess that fear to doctor at next appointment.   I am most certainly a glass half full person, always have been.  My husband is a bit of a pessimist but not to the point of being a drag. My health (aside from cancer) was very good. Physically fit, regular walker and runner, ate very healthy foods, maintained healthy weight, no smoking, social wine drinker but only on weekends and not a big consumption.  On the negative, I definitely worked too many hours under significant stress.  Running was my form of meditation and stress release. I was very self sufficient and self motivated.   My job relies on my brain and communication. It is a high stress position but generally I cope very well with that and find my work to be very satisfying. It's all sedentary, office work and the most physically draining part of going back to work will be the effort required having to get dressed, put on makeup and catch bus to city.   I didn't even know Alopecia was possible side effect.  My hair is much thinner and I have lost it along the base of hairline, but I just need a good short hair cut and will be ok.   I have muffled hearing but hoping that will fully pass or I guess I will have to learn to live with it. I have the constant phlegm in throat and the unsuccessful clearing of it. I have a lot of mouth ulceration that seems to be taking a long time to heal (and this is preventing me from being able to try more foods to swallow as only very bland food like oats can be tolerated currently) I have bad taste in mouth constantly (all that phlegm doesn't help) I eat oats very slowly each morning and yesterday managed to eat some 2 minute noodles at lunch time. I am going to try creamed rice next (home made). All other meals are supplements via the PEG. Radiation burns to neck are healing nicely (lot of red skin still but the broken skin has healed) Teeth are fine. I have nausea to the point of vomiting at night (weirdly always around the 7.30pm mark). The only remedy I can find it to ensure that all peg feeds are completed no later than 4pm each day. That way there is nothing to actually vomit up at 7.30pm. Dry heaves is all I could manage last night. Weight appears to be stabilising at 54kg. I started treatment at 57.5kg so this isn't too bad (I am a fairly small person and quite short at 161 cm), but I can't afford to lose any more. I am physically tired but not exhausted and I reckon I am getting slightly better each day. Mentally ok - but extremely bored with tv and my own company (the COVID restrictions have made this much worse because I have not been anywhere except hospital appointments for 9 weeks now. )   ... View more

Thank you Joe. I intend to reach back out today. You are certainly right about this new stranger I now am ... View more

Hi Rick...    I did consider trying the blog thing but, after insurance running out and my deciding to pretty much let things take their course...I found that I had no way of knowing whether the new problems arising by the 6th month were chemo/Rad related or the cancer returning.    My neck and face became pretty swollen, and somewhat disfigured and once again swallowing and eating was becoming problematic.  I pretty much decided to let it take its course and check out when eating became too painful to try.     A couple of weeks ago a friend asked me to google fenbendazole and Joe Tippens.  Research on Fenvendazole lead me to trying this.   I'm on Day 4, and can only report that my ability to move my neck vertically and laterally has suddenly dramatically improved.  My appettite has also improved, though my ability to swallow and the accompanying pain are still the same.    I will be happy to share the specifics of my findings on a personal basis as I journey through this 3 month experiment if asked.  My email is googling1757@gmail.com.    The reason why I hesitate to post a blog on this group is...I have no clue where this experiment will lead and none of us here need false hope.    The research on Fenbendazole looks pretty convincing, however, and I was sinking with no help in sight...     I will certainly share everything I document for the asking!    Cheers, Joe Aristy ... View more