April 2021
Hi Kat More questions coming your way lol i have been referred to see Dr Asnari at RPA I was hoping to see Prof Morris after all the wonderful things I’ve read about him but at the moment it seems I don’t have time to wait for a second opinion need to start treatment asap. I’m going in for another laparoscopy tomorrow also a colonoscopy and endoscopy as I have quite a few tumors in my bowel and she wants to see how much of the bowel is cancerous and if there is cancer in any other part of GI track to see if I can go straight for the big surgery and HIPEC or if I need to have chemotherapy first. Did you need to have part of your bowel removed? If so do you have a bag? How did you cope with your diagnosis? I was in limbo for a few weeks I knew it was coming but when she “officially” told me yesterday and I had to break it to my family was so hard, my head is a mess.
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April 2021
Wow that’s great that you haven’t had much pain, I hope I recover as well as you. Are you still in Sydney or were you able to go back home to Melbourne? Are you able to receive the rest of your treatment in Melbourne? I would love to stay in touch, I’m happy for you to add me on fb if you’d like if there is a way I can pm you my full name, it’s been nice chatting with you I hope you have a great Easter 🐣
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April 2021
Hi Kat thanks for writing back to me, I’m so glad to hear you are recovering well (sorry you had to go through it in the first place) my oncologist said that surgery might be a option for me if my biopsy results come back as pmp, I looked it up online the surgery sounds terrifying! And so painful, I don’t handle pain well 😬 lol I do have a few questions if you don’t mind answering them, Do you have to have more chemotherapy after your surgery? What stage were you? What hospital did you have your surgery? If I’m going down that road I will be having the surgery at RPA in Sydney. How old are you? I’m 31 sorry for all the questions
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April 2021
1 Kudo
I’m currently waiting for official diagnosis for appendix cancer, I had diagnostic / staging surgery on Tuesday just gone, my oncologist is 99% sure it’s cancer of the appendix as I have excessive mucin throughout my abdomen which is becoming very uncomfortable, I am just blown away as I cancer never ever crossed my mind. Would love to hear back from you if your up for a chat
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April 2021
I’m waiting for a official diagnosis for appendix cancer, went in for diagnostic / staging surgery Tuesday just gone I am absolutely freaking out about it! I’m here to chat anytime you need
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April 2021
1 Kudo
I’m 31 years old I presented to the Ed 3 weeks ago with abdominal pain I was given a ultrasound then had to go back for ct scan, I was told I have ascites and was given a abdominal tap but no fluid come out which the dr thought was odd, at this stage I was told I have several complex masses on my ovaries and omentum. I was then sent to westmead hospital to see an gynecologist oncologist he believes that the cancer is of my appendix as the ascites is gelatinous (mucin) I went for a diagnostic/staging laparoscopy surgery on Tuesday just gone they look samples of the ascites, uterus, appendix and took my right ovary and Fallopian tube. I am now waiting for the results which I was told would be about 7 days. I’ve been told it’s a rare cancer 1-2 people per million per year are diagnosed, I’m trying to keep myself together until I have been officially diagnosed but honestly I’m a mess I had no idea I was going to be thrown this I didn’t suspect cancer at all I thought I had a leaky gut or ulcer something “easy” to fix, Ever since I heard the big c I’ve fallen into a slump I used to be so active exercising everyday doing a minimum of 20,000 each day, I haven’t left the house since finding out only for appointments, staying away from people as I don’t want to upset my family. Feeling very lost and confused .
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