May 2020
Dearest Steve... I also had no support during chemo and after. I've lost nearly all my friends. Not one has asked how I am and how I'm doing. Not only did my friends desert me my parents also did. Kicked me out of the apartment they had for me while going through chemo...they said I complained to much and shunned me even more for taking pain pills. I had become a junkie to them. Why can people not understand this horrible disease? I am 6 months out of chemo and still feel i haven't gotten a clear answer if is gone. every time i went to dr. It was everything looks great only to go into the hospital for SOB and be told there were three lymph nodes they were still looking at. My symptoms have started again. I feel abandoned from every corner. Dealing with cancer i thought would be the worst..no..now i have neuropathy and absolutley miserable. I'm scared and fed up that i may never get back to normal.
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October 2009
Hi again,
I hope your husband is doing ok. That is probably a stupid thing to say but you know what I mean.
Is he beginning to have any difficulty with the neuropathy(in hands and feet)from the oxalipalitan yet? This has been the worst lingering side effect for me so make sure that he lets his oncologist know if it starts to kick in.
I had an official meltdown at the 8th-9th treatment mark when I was just so tired of feeling ill. This was where my husband was really good and helped me through that stage and back to the clinic I went!
I know it's hard if you are house proud (fortunately I'm not!) but try to keep perspective and don't stress yurself too much, if possible, if all is not how you wish it to be. It does go back to something like normal some day.
From a survivor's perspective, one of the more difficult things for me was that when treatment finished it was expected that I would be back to normal asap. I was back at work (teaching) within 4 weeks, making lunches and returning to normal.The old normal has gone and while he may recover physically quite quickly, the emotional scars still seem to linger. As you said, you may be more empathetic as you have experienced severe trauma yourself and perhaps for you normal was never the same.
Remember to be kind to yourself and to give yourself an occasional treat. Mine was avacado and prawns at the beach!!
Take care, Samex
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thank you again for your support. I realise this is public but at the same time I feel a little better than I have by posting this. I know everyone deals with their own issues in their own way, and this forum helps me. I wish those suffering with their own illness and family trying to deal with this all the best.
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