May 2020
Dearest Steve... I also had no support during chemo and after. I've lost nearly all my friends. Not one has asked how I am and how I'm doing. Not only did my friends desert me my parents also did. Kicked me out of the apartment they had for me while going through chemo...they said I complained to much and shunned me even more for taking pain pills. I had become a junkie to them. Why can people not understand this horrible disease? I am 6 months out of chemo and still feel i haven't gotten a clear answer if is gone. every time i went to dr. It was everything looks great only to go into the hospital for SOB and be told there were three lymph nodes they were still looking at. My symptoms have started again. I feel abandoned from every corner. Dealing with cancer i thought would be the worst..no..now i have neuropathy and absolutley miserable. I'm scared and fed up that i may never get back to normal.
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May 2010
Jo and Julie on very good advice from you both I have decided to keep on eating chocolate yaaaay. It is one of life's little pleasures and I am sure we are entitled to have a little bit of pleasure after what we have been through. I thought of something rude then - it's not crude or vulgar - but after menopause and the operation - chocolate is my one true pleasure!!!! yeah bye and thanks
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February 2010
Thank you Willow! It does feel a little unreal still but it's getting better with every day!
I read your blog Willow and I'm sorry you are going through a rough patch. Just know that it will pass and you are entirely entitled to how you feel. I must admit that I admire those patients (like my husband and yourself) that continue to go to work while having treatment. I don't know how you do it but I can certainly understand your frustration.
It's hard to see people go on with their every day lives when you are stuck in limbo or your perception of life changes. People here care and we will listen whenever you need it ok?
Take care xxx
Jo
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February 2010
Hey Jill
Yeah things are going ok. How about you?
I've got some temp part time work for the moment to get us by until I find something a little more permanent. It's not full time but it's better than nothing and takes a bit of the strain off!
Hope you're doing ok
Jo xxx
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January 2010
Hi Alana,
I totally get the 'spooky' bit of significant events eg. diagnosis, happening on other significant dates.
Greg was diagnosed on my Dad's birthday, and so many other things since have happened on a 'significant' date.
Hope you had some quiet moments of reflection of your Grandad and were able to find some memories of him that were able to bring you some joy amongst the sadness.
Will be thinking of you Tuesday (19th??) on what I imagine will be a very difficult day for you.
Take care,
Jill.
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December 2009
Hey Jill
I was just thinking about you - I hope you are ok.
Yeah, I've been really surprised by people's behaviour once Rob was diagnosed but really, I went through it once before with my own accident. I just thought back then it was me LOL.
I've culled quite a few friends since Rob's diagnosis, including the crazy bitch above. I just can't give any more of my precious energy away right now but it seems, many do not understand how taxing it is.
I thought perhaps I was being too whiney or venting too much but then I thought, what do people expect? My husband has cancer, I'm stressed beyond words and more than anything else, I'm scared. Probably not going to act within normal boundaries when it comes to something like this.
So, I'm going to cut myself some slack - anyone else who doesn't feel like I deserve to, can get knotted!
Thanks for your advice Jill... everyone here are life savers!
Jo xxx
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February 2010
Hi Kelly, I am so sorry to hear that your sister has passed away. Life can be so cruel sometimes.Sending love and best wishes to you and your family and thinking of you and hope you get through today OK.
Gail xx
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November 2009
Kym,
I hope you are feeling better today. Your world has been turned upside down. Your nearest and dearest can help only in their usual way.
Only someone who has had prostate cancer can understand what you are going through.
I found what helped me was lowering my expectations of myself and others, either by communicating/managing them - bummer I know (it would be great if someone could do this for us)! Initially, I had a lot of anger - I felt victimised by the disease - it ruined my holiday plans, my husband plans possibly my fertility and I was out of work. I wanted to be around people but on my terms not theirs incl my husband. It's about control and power struggle. It is really hard for people to see it that way because on the outside you appear ok.
On this forum you can have a "whinge" with us - that's what we are here for because "we get it". Empathy is hard to find these days.
You have been through a lot (and still are) so your feelings/reactions are a moving target and adapting to your new life. Some things will be same but you also need to see it as a time for change - eg. work hrs, alone time with your wife and spending quality time with the children. Perhaps you need some quality time for yourself.
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