Im in that dark place at the moment and your story is what I needed Thankyou! ... View more

Hey just read your post and Im so sorry that this is happening to you. This is an awful time for you and your family and what really ramps up the stress fear and worry is the waiting and living with the unknown whilst you wait. It truly sucks Ive just come through the wait/diagnosis period of the cancer experience 4 months of pure hell. But there is so much that you can do to improve it and it starts right here seeking support it was the best thing I ever did. I reached out to the cancer council support services spoke to a support worker and it was a defining moment in me gaining back some control in my out of control life. Your family also have access to support services too. You dont have to go through this alone. Your GP can also be another great support they are there for your mental health as well as the physical so when you feel overwhelmed make an appointment tell them how you are feeling. There is also this forum there is always someone here who  will reply. Youre not alone we all understand the trauma of a cancer diagnosis. Sending you massive hugs and good vibes Helen 🤗🤗 ... View more

 Ask for it.....and if they say no ask why not? ask if its available privately and see how much it would cost. You might be able to fund it another way? Ask if there are any trials? Ask for alternatives.....absolutely ask the questions and get answers. They may not be the answers you want but you will feel a little more empowered by it and you may find an acceptable alternative. Good Luck 🙂 ... View more

As we know noone is "lucky" anything when you have cancer either way good or bad  its traumatic so dont feel like you have to behave lucky being offered trials if thats not the way you feel. Cancer sucks big time regardless. I feel for you one of the worse things about it is what I call the no guarantee policy that comes with it. You go through one traumatic treatment and there seems to always be something else I have endometrial cancer and about to have my surgery and then I have to wait for pathology to know if I too will have to have chemo/radiation or both. It will be 3 months by the time I actually know how they plan on treating my cancer and as you know it hijacks your life and is all consuming. At this point Ive got the surgery mountain to get over and have no idea what Im going to face on the other side. I totally get what  is making you sad and anxious. On the bad days you just want to run away from it all. Im glad your Onc is nice it helps a lot. Im having a good day today and making the most of it thanks for asking.  Do you have a support person? I hope so I really hope that tomorrow is a better day for you. 🤗 Helen ... View more

Hi Belinda56 Im so sorry that you having a difficult time with your treatment I feel like you need to have a talk with your Oncologist about how you are feeling and ask her what outcomes she is expecting to achieve in terms of undertaking the trial. It would be good to get her exact reasons for having you do this trial. The next thing to ask is what it entails and what happens after the 2 years. If you feel you cant talk to her make an appt with the clinical nurse and talk to them I find they are very good sources of information about your treatment and have direct contact with the Drs and will advocate for you if necessary. You have done amazing so far 14 cycles that shows real strength and resilience. We know with cancer its one mountain to climb at a time. I understand exactly how you feel when I have my down days I feel like I will always live in its shadow and I mourn the person I was before I got the call that changed my life so suddenly. Those of us with it know that no matter what anyone says its a nightmare you wouldnt wish on your worst enemy. But there it is. Get those answers from your Oncologist talk about it with your support and make your decision . Sending you a big hug and best wishes and I hope you feel better soon. xxxx ... View more

ow things ramped up quickly ....my surgery is this coming Tuesday had my preop on the Thursday just gone was not expecting this so soon. I went to my first appt last Monday they told me it (the total hysterectomy and Sentinel node biopsy) would happen within 2-3 weeks. So I felt like I would have some time to prepare the following day I got a call to say I was booked for following Tuesday and my preop on the Thursday. Took it of course and its been such a whirlwind full of anxiety and up and down emotions (my poor husband ☹️). I am really scared it has been a gradual realisation that the diagnosis of cancer is a looooooooooong drawn out process and really the surgery is actually part of the diagnostic process (if your lucky it can be the treatment and end there) its just harvesting all the cancer ridden tissue/organs so they can send it to pathology (this can take up to 2-3 weeks!!!!) where it is  determined the type and grade of your cancer and THEN they will decide the treatment based on that.  I ve been lucky I know that my process has been accelerated due to persistence circumstance and timing. All I know is the surgery cannot come too soon for me I want it gone I have started to feel really unwell in these last couple of weeks tired drained and achey. I have been having to have big sleeps in the day. Any way another major milestone is looming a particularly horrific one for me as I have major anxiety around surgery of any kind (due to a previous bad experience). All I want to say is that my cancer treating team have been so helpful to me they have been kind and understanding and supportive when I have felt out of control and anxious. My husband and family have been really supportive too. I know it has not come easy to my partner but he has stepped up and I dont feel like I have to divorce him now (joke of course  humour really helps me to cope) 😂😁 I have been exercising when I can nothing too crazy lots of walking and youtube  exercise (such a great resource for exercise, yoga, meditation, sleep music) So thats the update I hope everyone else is doing ok  Sending good vibes to everyone thanks for reading it helps to get it out Keep Safe! 👋❤️ ... View more

Hi From what Ive researched it appears to make a real difference. Was wondering what influenced your decision to go with radiation over chemo if you dont mind me asking you dont have to reply to this question 🙂 Hope things are going well with you. If they offer me the chemo and radiation Im taking it I had already made my decision on that based on my research. ... View more

Hi Trobbo67 Im really sorry to hear that your cancer returned. Thats terrible news thanks for telling me your story and giving me the advice. I will certainly be upping my exercise levels (just walking distance wise) but I think I might throw some weight work in as well. I have changed my diet too and have lost weight and intend to continue. Its hard to know what to say to make you feel better I think we both know I cant. All I can say is I hope you have a lot of love and support around you. I dont know where my journey will end up but I have been researching (as much as my anxiety will allow me to) and even though this cancer has good prognosis the reality is a good chunk of us will have the cancer return. One has to accept that it is part of this experience and Im really sorry its a part of yours. Sending you the biggest hug and love xxx ... View more

Hi Maveson2 Thanks for replying hope you are doing well and yes it is certainly about taking a day at a time. 🙂 ... View more