About djs

djs

17 months after I finished 7 weeks Chemotherapy and 35 doses of Radiation therapy, I have Phrenic nerve palsy and Diaphragmatic weakness. Caused by either the Chemotherapy or Radiation. No cure and my left lung keeps collapsing. Has anyone else had heath problems from thier treatments? Dace.

djs

Hi Linda, thank you. I have stoken to cancer victoria nurses, I have used the counsellers. Yes they help you get things off your chest, but carn't help when it comes to people not doing their job. I had a CT scan of my neck/Jaw, even my GP couldn't work out what it ment? So I'm lucky that I have contacts at Peter Mac, they have made a appointment for me next week for them to investergate it. Which they have always been there when it comes to anything to do with my head and neck. So I don't know if there is anywhere for me to go? Or just wait and hope something will turn up one day. David.

djs

Hi Greeny, sorry to hear, I haven't been on here for awhile. But I'm not sure where you were treated? Don't listern to them when they say its all natural and it's just natural after chemo. Thats bullshit. I had a toumor a the base of my tounge removed, a toumor and right tonsil removed. I also had cancer in my right lymph nodes. 25 doese of radiation and 7 weeks of chemo. I got small blood clots from the chemo that went to my lungs and then into my heart. The base of both lungs collapsed, no follow ups as everything was just part of what happens and it will take 3-6 month's and I should be good. I had my last treatment in September 2022, I'm still not working because I struggle to even have a shower without running out of breath. Don't just except it. Demand help. Make sure you get answers to all your problems and questions. Dave

Lyndy60

Hi Salival i just sent you a message but being new to this site I didn’t check the date of yours and realise it was a while ago and you have come out the other end 👍 I have read what you have been through and your strength and determination is admirable. I do hope however that I don’t get to go through a lot of what you said, but it is good to get a heads up, and if I have to, I WILL and look at better health 🙏down the track. All the very best health to u. And enjoy every minute with your dear family and friends.

djs

Hi everyone, I'm wondering if anyone is having trouble with after effects from Chemotherapy and Radiation treatments? I'm 60 year old male, I had head and neck cancer last year, I had 35 Radiation treatments and Chemotherapy of 5 weeks of Cisplatin and 2 weeks of Carboplatin / Paclitaxel treatment. It knocked me around a lot. I ended in hospital with what they thought was blood clots in my lungs, it turned out the base of both my lungs had collapsed. 11 days on oxygen, I was sent home. 5 months later [ and no follw ups ] I'm still having breathing problems. I have seen a Respitory Specialist and after scans and test they found nothing wrong? I have numbness in my forearms from the same time, and it doesn't happen? I have read up on everything that has been reported in my scans and tests. The damage the Chemo and Radiation can do, I'm wondering if a specialist that doesn't specialise in caner treatments, really understand what it can do to the body? Chemotherapy can damage the hair inside the lungs that absorb the oxygen that transfers it to the blood, it doesn't show up on a standard ct scan? [ from what iv'e read. ] I'm just wonder if anyone else has had delayed after effects after their treatmens? D

djs

In February 22 I was diagnosed with with cancer in my lymph node in my neck, after a few biopys, I was at one stage, thought that I didn't have cancer because all tests except for an asperation that was done on my lymph node at the start came back negative. I had 2 tumors removed from the base of my tounge and from my right tonsil, that came back negative. After 35 doses of Radiation and 7 weeks of Chemotherapy my cancer is in remission. I do wonder if it will come back because they never found the primary cancer? I am staying positive. I have enough after affects from the Chemo to keep my mind busy. David.1

djs

Sorry it's been so long. I'm still going through problems. My cancer is in remission. But my breathing problems is still on going. But I have found out it wasn't from the blood clots. The bases of both my lungs collapsed, I have CAC [ calsium build up in the polumary artiries, which happens to people over 70 ] but Chemotherapy can make it worse by more than 35%. I also found out that the hospital disscharged me the day after receiving my last Chemotherapy treatment? So everytime I tried to get help it was someone elses problem. I've had to go private without health cover. I'm not going to let lose on the hospitals but they need to really have a good look at them selves. One report had a reffering DR on it, the Dr doesn't even exsist? 5 months after being in hospital because I was struggling to breath, Nothing from them at all. Even after putting in a complaint, no help at all. I guess my warning is be carefull, I was lied to that I would get a Medical Oncologist allocated to me! It never happened. Just try and keep positive. David.

Jim644

Hello Dave, I was diagnosed with stage 4 Laryngeal throat cancer in October this year. I start Chemotherapy and radiation therapy together next week, 12/5 Although they tell me it's stage 4a I always think the worst and hope for the best as you should. My Dr's all tell me it's treatable and curable! Never heard of stage 4 Laryngeal cancer being curable but hay, I'll take it true or not. Contact me anytime for chatting because I'm beginning my treatments beginning next week Jim

djs

I'm sorry to hear your diagnose, you will get a lot of different people with whom you can talk to. Yes it is very scary when you first hear the word cancer! Yes the road is a scary one and the worst part is the mind. It plays such a terrible part, it finds a way to alway's find the worst. Family and friends can never be underestimated. Yes I had an unusual secomestance with my diagnose, but in the end they got the right diagnose. The pain after my operation was terrible but didn't last for as long as it might of. I start my last week of Chemo and Radiation next week and although I have had problems especially with the chemo, there are a lot of people out there to help. I was told by a friend's wife who is a nusre, NEVER TRY AND BE A HERO! Chemo and Radiation affect everyone different and if your having any trouble with anything speak up. I learn't that the hard way, typical male I can do this! Well I couldn't. So I contacted my Chemo nurse, that was in week 2, I'm in week 6 and my medicine's have still been changed to help. I wrote down all my question's on my tablet, so everytime I had a meeting the questions were there in front of me, I also made sure I had someone there with me as they always have questions that I didn't think of. Positive thinking and having a goal at the end really does help. Mine was to look out into my back yard at my boat that I am going fishing as soon as this is over! I wish you all the best. Stay postive. David.

djs

Hi all, I have a SCC cancer in my Right Lymph Node, it has doubled in size in 9 weeks. I've had a tumour and my right Tonsil removed, I also had a tumour and the base of my tongue removed. Both came back negative. So they can't find a primary cancer. I'm having a CT scan with contrast next Tuesday, then a meeting with ENT surgeon, Chemo therapist, Radiation therapist, Ocologist to discuss what's next. The surgeon today said that they are looking at Chemotherapy 5 day's a week for 6 week's. Then Radiation instead of removing the Lymph Node. Just wondering if anyone has gone through this amount of Chemo? I understand that it affects everyone differently, but just a bit of insight would help. It might even just give me some questions to ask? Thank you. David.

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