April 2024
3 Kudos
Hello, Aren’t the 60 day prescriptions fantastic. Cost savings for a chronic condition!👍 Unless you have Cancer that is! Well anything but Breast Cancer. Not one single medication I take is covered! How Can that be? having Cancer is depressing but anti-depressants aren’t covered! Then there are the pain killers…not covered, the anti-emetics..not covered, the antacid meds…not Covered and on and on it goes! just saying that’s all. its an expensive “journey” and no flights involved! Julia
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April 2024
Hello, I have/had I am not sure cancer if the Oesophagus. I have had surgey and they removed my oesophagus and used my stomach as the oesophagus. Anyway I had immunotherapy for a few months and then had a reaction to it. i t caused a reaction in my lungs and I have had respiratory failure twice. Anyway I survived but Immunotherapy does offer help but it doesn’t always go the way you want it to. i have had almost 2 years of the Big C and have tired to pretend its all ok but in truth mentally not so good. Don’t buy into the “being brave” or stoic or my favourite “an inspiration”! Go with what you feel. Be sad, mad, confused and over it.. Take Care J
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December 2023
2 Kudos
I was thinking about it? Living with cancer you become familiar with the term “Wellness centre” or some such label! Perhaps Therapeutic Centre. But would we be in the “Wellness” centre if we were well? Who came up with these names? Is attached to funding streams? Was there a “Cancer patient advisory group” Just musing thoughts while sitting in the “Wellness Centre”😊
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November 2023
6 Kudos
I have to say though my very favourite thing to do between or even treatments is a visit to Centrelink! Or preparing reems of paper detailing every possible aspect of our lives. IF EVER THERE WAS SOMETHING TO SEND YOU SCREAMING to the psychologist its an application for funding. I was advised to apply for job seeker! But I couldn’t work due, to treatment a surgery. So I was exempt from looking for a job! Every fortnight submitted my earnings and got …………0, zip, nada! afrer 13 weeks I received a letter. dear Julia, you will no longer receive jobseeker payments as you haven’t received jobseeker payments for 13 weeks 🤦🏼♀️🤦🏼♀️🤦🏼♀️🤦🏼♀️ So I would no longer receive the payments I never had! And that took am40:pagemapplication 😂😂🤣🤣
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November 2023
2 Kudos
Hi Jennifer, i hope you have a wonderful time on your real journey. Enjoy every minute 😘😘
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June 2023
3 Kudos
Thank you Linda, I have had to accept a whole new language, Meditation, Mindfulness, gratitude diary, deep breathing, anything ending in “ologist”, And of course Centrelink, Adapting to a “new way of being” is hard when you liked the old way of being, and the new way is not flash! Someone sent me an article saying I” became a better person through cancer.” But the other one pre cancer seemed ok!
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June 2023
8 Kudos
I don’t understand why cancer is called a journey? A journey to me involves a plane to somewhere with sunshine, preferably with a pool and on tap cocktails. I haven’t been anywhere except appointments, and the only cocktails involved were chemo, movicol, and coloxyl I am still looking for the pool!
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September 2022
1 Kudo
Hello I hear you. I was recently diagnosed and was self employed and am not allowed to work. i couldn’t anyway. I have medical certificates and have to apply for “job seeker”. I ,tired explain I am not seeking a job but thats what I have to do? Madness. i too am not eligible for anything by a hairs breadth. I can’t get transport funding as you have to be 100 klms from the specialist and I am 88 klms. i can’t get a healthcare card as I am not in receipt of Centrelink payments, which I can’t get because my husband works and gets just over the amount allowed. i have to have supplements which we pay for, meds which we pay for, petrol back and forth (we are rural) blah blah. applying for all this whilst having daily treatment is a nightmare. I don’t have advice sorry only empathy.
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