Dear all members, Our family are only new to this blog, and we would like to say, first of all, what a warmand welcoming place it is. Being confined to hospital, it is hard to find a support network that sticks, except for family. We would like to introduce ourselves. Sam (me), Alison (Mum), Alannah (sister), and Josh(sick brother). Unfortunately, our immediate family is not much support, perhaps they can not find the strength to cope. Mum and I have been the strongest support for Josh throughout his cancer story. At 5 years old this August, i tell you what; he is my inspiration. He is strong, brave and the happiest kid ive ever known. We are here, to give support to families like us, going through the cancer journey. We have found, that there can never be enough support. The type of cancer Josh has is very rare, and occurs during the infant stages of life. Josh has a prosthetic eye, and currently, his only eye left, is under threat due to Vitreous Seeding of the gel sac in the eye. If these "seeds" drop in the Macular, his eye will have to be removed, therefore, he will be blind. In order to save the vision he has left, we are undergoing a 3rd year of chemo with Josh. Today he finished his 1st of 4 cycles. All we are asking, please, please pray for our little man. Prayers and thoughts with you all, The Johansen Family =]
6 Comments
Nikki_YAC
Frequent Contributor
Hello The Johansen Family! Thank you for signing up and sharing your current situation with us here. It sounds like Josh and the whole family have been through SO MUCH and still have yet, a few mountains to climb. I send you all my deepest thoughts and well wishes towards finishing his treatment successfully and I hope you all see the sunshine through the clouds upon reaching the top of those mountains REAL SOON. Till then, please drop us a line and share what ever it is that may be on your mind Sam. All my best, Nikki
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TheJohansenFami
Not applicable
Hi Nikki, Thankyou very much for your kind words. Something that may be so simple as words, has meant a great deal to myself and the family. Your thoughts and prayers are very much appreciated. Thankyou very much once again for taking the time to say hello. Im sure we will speak soon. Til then, Best wishes, thoughts and prayers, The Johansen Family :)
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admin_one
Contributor
Welcome to all of you Johansen family, I share my thoughts with Nikki. Sending you my warmest thoughts and hoping you can find in our community some support through this journey Stay in touch. Best wishes, Raul
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TheJohansenFami
Not applicable
Hi Raul, Thankyou deeply for your kind words, they mean alot to our family. Hopefully we our family can help others, just as they have helped us. our Thoughts and prayers are with you,Best wishes!! The Johansen Family
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Not applicable
Hi there, Thankyou for sharing your story with us. Although my heart is breaking to hear of someone so young going through something so very difficult. Our beautiful baby is turning 4 next week and we realise how lucky we are that our children are healthy. Your little brother sounds like a little cutie. I will keep him in my thoughts and hope he is well again soon. Hope to chat to you soon. Butterfly
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Livey
Not applicable
HI Johanson Family, MY Prayers are with you at this time for your little one..it is hard when you dont get the support of family..but you have the support of us online now and i am sure we are all sending a special love to you and family.. and the little one. I have asked the salvation army to pray for you all this Sunday. LIVE LAUGH LOVE.From Livey.xxooo For the little one
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