Hi,
We are at almost 4 years since my husband was diagnosed with a grade 4 GBM, we too are in final stages of the disease.
We have income insurance for my husband however I'm still in my early 40's and work in a senior exec capacity. Although the company are sympathetic to our situation I understand the need for them to have a return on their investment in me. Additionally, when my husband dies there is no financial payment coming to me, we are a second time round marriage, his son is his benefactor so you see, I have to work.
It's hard, I'm only just holding on. Last Friday we met with the Palliative care doctor who informed us, of all cancers, primary tumour has the highest "burn out" rate for carer's - fantastic!!
Enjoy your time with your husband, while you can, it's precious.
Jobeth.