He was diagnosed last year, and he was started on a Gemzar-Abraxane regimen. We remained positive for the three cycles which were recently completed. However, on followup we've found out that the regimen didnt have an effect and its spread to the liver. The doctor is recommending switching to an alternative regimen. I've read about this enough to understand his prognosis is very poor, and its very hard to remain positive each day. His condition is deteriorating, he barely eats now and the pain is constant.
Thats disappointing the combo chemo did not work hopefully the next treatment may help your father,if the pain is constant, is his pain med dose strong enough,sometimes the chemo can help with pain also, but clearly his didn’t.
Watching our loved ones suffer and feeling so helpless = ☹️☹️☹️
Whilst we are very much in the early stages, I think clear communication in relation to what benefit can be expected is vital.
From my observation our son's Oncologist hasn't been as informative in a way that we could understand and it has been frustrating that as he is her client, she will not divulge any information unless he agrees. I mean he agrees but we only hear her when we are there in the appointment. He doesn't tell us much. So we feel like we are in the dark and ineffective. I feel that the Oncologist, whether it is policy or personal, will not give us a very likely prognosis. She runs with his guess at 6 months. We are here guessing he has two months. In the meantime he is desperately looking for ways of beating it, but one look at him tells us differently 😞
I am so sorry to hear that, Jeff/we have gone straight to palliative care as chemo may(30%) have reduced it but definitely no cure and quality over quantity looked the better option.
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