adenoid cystic carcinoma of the breast

[kerr]

hello, how nice to have discovered this site. I was diagnosed nearly 8 years ago, and had a mastectomy. Have found my health is now compromised particularly in my sinuses. often feel like I am going mad as I worry about my health. Nice to not feel so alone.

[SILLY]

There are a few others here who have ACC but they do not post often . Having it in the breast is rare but I have met some online who do have the same as you .

[kerr]

I would be very interested in catching up with anyone in Sydney who has had an adenoid cystic carcinoma. Also I would love to go to Brisbane to meet other acc survivors in March. Please contact me at kerrfil@optusnet.com.au. Thank you ...Kerr

[SILLY]

I have lost your email address .

[SILLY]

Found your email address .

[Readallaboutit]

Hi Kerr I also have adenoid cystic carcinoma (breast) and have known I've had it or something not right for many years. Last year I was formally diagnosed after pushing to get noticed in the system just recently I have has a unilateral mastectomy and now I am looking at chemo or radiation to blast in case of remnants. My condition is triple negative so yes I need to get on to it. But it has been hard to find anyone else with this condition. However I'm based in Melbourne not Sydney 😞

Fiona

[Readallaboutit]

Hi Silly I'd be keen to chat or catch up with you or the others you speak of with this condition that would be great.

My email is fifinotapoodle@yahoo.com

Fiona

[SILLY]

Sorry for the late reply . I'll send you an email .