adenoid cystic carcinoma of the breast
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adenoid cystic carcinoma of the breast
hello, how nice to have discovered this site. I was diagnosed nearly 8 years ago, and had a mastectomy. Have found my health is now compromised particularly in my sinuses. often feel like I am going mad as I worry about my health. Nice to not feel so alone.
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7 REPLIES 7
Re: adenoid cystic carcinoma of the breast
There are a few others here who have ACC but they do not post often .
Having it in the breast is rare but I have met some online who do have the same as you .
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Re: adenoid cystic carcinoma of the breast
I would be very interested in catching up with anyone in Sydney who has had an adenoid cystic carcinoma. Also I would love to go to Brisbane to meet other acc survivors in March. Please contact me at
kerrfil@optusnet.com.au. Thank you ...Kerr
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Re: adenoid cystic carcinoma of the breast
I have lost your email address .
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Re: adenoid cystic carcinoma of the breast
Found your email address .
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Re: adenoid cystic carcinoma of the breast
Hi Kerr I also have adenoid cystic carcinoma (breast) and have known I've had it or something not right for many years. Last year I was formally diagnosed after pushing to get noticed in the system just recently I have has a unilateral mastectomy and now I am looking at chemo or radiation to blast in case of remnants. My condition is triple negative so yes I need to get on to it. But it has been hard to find anyone else with this condition. However I'm based in Melbourne not Sydney 😞
Fiona
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Re: adenoid cystic carcinoma of the breast
Hi Silly I'd be keen to chat or catch up with you or the others you speak of with this condition that would be great.
My email is fifinotapoodle@yahoo.com
Fiona
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Re: adenoid cystic carcinoma of the breast
Sorry for the late reply . I'll send you an email .
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