I am feeling very isolated as oldest friend not responding how I imagined. She doesn't understand the shock aspect of my diagnosis. Also I can't tell my family except 1 brother as he says parents and sister will not cope. He is possibly right. I feel like I am on another planet from my friend and scared 45 yr f/ship will not survive. How do others deal with feeling so outside daily life that others take for granted?
Not sure, but will try to join in Monday night.
I am also a volunteer for cancer council NSW with their cancer connect programme. That is where a patient is matched up with a volunteer that has experienced the cancer, the treatment, side effects or anything else that you both have in common. It is over the phone and completely confidential. If interested call 131120 and ask to be connected to cancer connect. It is good to know that you can talk to someone that understands.
Same thing happened to me. I was given a fuller diagnosis on Friday 13th of all days. Although I could tell everyone it was clear that I had crossed a line and was different. Only people who can understand are people who have gone through the same experience. Everything is different now. No going back. Everyday life is surreal.
You are right that when a Dr uses the C..... Word things start getting surreal. It is like being on the other side of a line or curtain. Before I was diag in Jan this yr I really had no idea what it really would feel like. I guess now I have to give others a chance to understand even a little but they won't really get it as we do.
Being diag on Fri 13 is a bit ironic / freaky. I had an incident on NYE that told me things may be bad so that was freaky / ironic too
Know that there really is a big online community here who is with you. I have been very amazed how ppl are so supportive on this site. I decided to join because of no family support and best friend wigging out. I hope you find the support u need among friends, family and here with us fellow journeyers ( is that a word? )
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.