Hi I am another new person to this sight. I have just had 2 operations the 5th feb to remove the left thyroid and the 5th march to remove the right as the nodule on my left was cancer. It turns out it is a rare form of thyroid cancer and it is an aggressive one.
Wondering if anyone else has heard or has this cancer. I have to have radio-iodine treatment and am hoping that the results of the body scan indicate that this cancer has not spread anywhere else.
Needless to say I have gone from "yay thyroid cancer is the best to have because its a better prognosis" to "shit this is an aggressive cancer and do I have it elsewhere.
Either way, I am trying to stay positive and only think one day and step at a time as I am in good health (better than I have been in ages)and am surrounded by great people.
Looking forward to hearing from anyone.
I am newly diagnosed and have gone through almost exactly the same thing - thyroid is the most treatable so everything will be fine, to yours is a rare more aggressive type of thyroid cancer we have to do lots of tests. I was diagnosed on Thursday last week and yesterday told by the specialist it was more serious. I'd love to talk to you more about the surgery (I'm expecting a complete thyroidectomy and lymph node dissection of everything on the right hand side). If you are happy to talk and share your experiences so far I would love to talk more.
Best of luck with your treatment, and I hope the body scan results were good news.
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.