I am wondering if there are people on Cancer Connections with this rare sarcoma ...Gastrointestinal Stromal Tumour (GIST)?
I had surgery on the 1s to August to remove a 24CM tumour and have now started on the Chemo. drug Glivec (imatinib).
From all my online research there would not be too many people with GIST in Australia.
P.S. I am a 7 years survivor of Oral Cancer.
Yes, I'm on Gleevec post-surgery, too. Mine was rectal, and is an Exon 11 deletion with 30/50 HPFs (high risk of recurrence).
You'll find me on the GIST Facebook pages, too, as well as the Dana Farber Cancer Institute groups.
Hope you are doing OK on the Glivec.
I have only been on it for just over 2 weeks...I take my 16th tablet (400mg) after dinner tonight.
So far so good with pretty minor side effects.
I am very new to this so there is nothing I can offer in the way of advice. I only know that the Glivec should be shrinking your tumour.
Are you having CT scans every 3 months?
I was diagnosed with metatastic gist exxon 9 in my liver on 13/9/11 and was put on glivec 800 mg for 14 months.i have only found about 10 people with gist in australia in 2 years.i hope you have a good response on glivec it has been the easiest one for me to tolerate.hoping for the best for you footie.
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.