Hello everyone, wishing everybody my heartfelt thoughts through your journey either with yourself or with your family.
I have a question - my daughter who is now 5 was diagnosed at 3 years old with Medulloblastoma (brain and spine cancer) .
We were in the hospital for a long time and finally went home, (our story is really long) she has a gtube and trach but luckily she pulled thru difficult critical times.
We brought her home but chemo didnt do much for her aggressive cancer. She did radiation but her tumour came back. She just had surgery and they dont think she can be cured but we are doing all we can to give her more time with us.
So my main question is, I am going to be bringing our new baby home in January. My daughter is going to be starting Affinitor (chemo/targeted therapy) which will only
be about 2ml Thru gtube. my husband will be giving it to her, but I change her and all that stuff. (She was on a oral similar med but she stopped bc it wasnt working) so I was very careful. I sealed everything, wore double nitrile gloves, a mask and washed my hands throughly more than once each time I changed hermy main question is If I wash my newborns clothes in the washing machine seperate from my daughters (which she probably wont get much on her clothes) anyway, would this be ok?
i’m nervous the mediciation will linger in the machine like I wash hers seperate and also wash the new baby’s clothes in there would you be concerned?
I know I sound crazy.
Just so hard not to worry About everything.
thank you for your reply. I clean my machine with tablets every so often anyway so I was thinking that as well.
doesnt seem as if anyone else worries of this as much as I am as google isnt bringing up much if anyone ele has ever asked this!
maybe I’m overthinking.
I'm SO SORRY you and your family are going through this.
I would trade places with your oldest daughter in a second...
Your post is exactly why I don't worry about if I do have cancer...
I'm still waiting for my biopsy results.
My heart hurts 💔
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