Hi @Cindi54  thank you for your kind words  usually you see all names of everything on the pictures, but bladder cuff is not mentioned on anything but I think you maybe right it’s where the ureter attaches to bladder  Quite amazing that you and I both have the rare ureter cancer that is very rare in women  From the report but of course I’m not sure, it didn’t seem your kidney had cancer  I know they said my kidney may go too, but not any more as it completely healthy and cancer has not travelled that far, my ureter has cancer from bottom which I guess is bladder cuff but doctor has never said that word and is about half way up  My cancer is all enclosed in bladder  bladder cancer and ureter not common together and less common in women  ... View more

Hi @Richard56  Thank you so much for your kind words, and the antibiotics are starting to do there thing not coughing as much, bad coughs simply knock you around and make  you feel miserable,  i think by next weekend I will be an anxious mess 😔 Hope your going well and had a good week  hugs and cuddles always  Jennifer  ... View more

Hi @Cindi54   I’ve probably been pretty lucky as I’m not sick at all or even tired, felt really knocked around for a few days but the constant cough certainly makes you feel simply miserable, eight days today and antibiotics are starting to do there thing  not coughing nearly as much  yes absolutely the amazing things they do now, what is the bladder cuff I’ve never heard of it and can’t seem to see it on bladder images, even in the booklets I have from doctor  From what I know I will still have a bit of an incision as my bladder is to be removed, my cancer ureter should only be half removed  my stoma nurse is so lovely and comforting  I think next weekend I will be quite anxious 😟 though    hugs and cuddles always  Jennifer  ... View more

Hi @Cindi54  You certainly have been having a tough time, don’t put too much pressure on yourself, although you want it over with, if it is wise to have a break to give your body a rest maybe a good idea, then again if they are happy to keep going, I guess you will hang in there and be pushing on, hope all goes well next treatment, I know how strong you are  I will be having robotic surgery 3rd December for a major Cystectomy, I have a terrible cough at moment, are on high dose antibiotics at this stage still going ahead, but I’m not confident it will  take care lots of hugs and cuddles Jennifer  ... View more

Hi @Cindi54  I’m so sorry to hear of your recent hospital emergency, I do hope you are feeling a lot better. I hope the chemo is not taking a toll on your body, and maybe a break from chemo is a good thing as it certainly is giving you such a hard time  my good thoughts with you that you will back to the things you love so soon  hug and cuddles 🥰  ... View more

Hi @Cindi54  I am happy you are a lot better today, you certainly get knocked around so much, cancers in different parts of the body work so differently and treatments all so different. I hope things are only on the improve for you with your strong attitude I am sure you will be back doing the things you love sooner than you thought  my kind thoughts and comfort cuddles with you  🤗🤗🤗 ... View more

Hi @Richard56  so pleased for you treatment has gone well and pain is  manageable, it  must have different effects for men and women, I remember my BCG nurse did say that men can experience more pain and women can have little or none, I guess I was one of the fortunate ones  hope it continues well for you  good thoughts and hugs always  😘🤗🤗😘 ... View more

Hi @Richard56  I wish you good luck, but you have got this you will be fine  good thoughts coming your way with comfort hugs  😘😘🤗🤗😘😘 ... View more

Hi @Richard56  I absolutely go through nothing like you  and Cindi and many others, my hospital stays maybe two nights and yes I have gone through lots of surgery procedures, 12 BCG and three chemos and multiple stent changes, I have never been on any medication other than Panadol I rarely have pain and my side affects only last a day and always back to normal, l  am  T1G3 high grade but if I didn’t know, I wouldn’t know anything was wrong, I have a stent that I have had for over eighteen months and wouldn’t know it was there, I feel like such a fraud at times when I hear the struggles you and others are going through  I try not to think about anything being wrong but at times it does get to me ,  I never take it to seriously, my professor knows this and I believe this is why I received a two page email from him recently, I think to have in writing for me how serious I am.  I will be having surgery in three weeks, Robotic major surgery cystectomy and uretherectomy  which will see pain and a long recovery  Has become time to seriously get rid of this cancer and the rare cancer  kind thoughts with you Jennifer      ... View more

Hi @Richard56  Anxiety is something we certainly suffer, and I have had nine surgeries in the last 18months and as I lie on the bed waiting to go to theatre I have suffered meltdowns, the day before hospital is usually full of anxiety. Everyone is different and although my GP has thought anti depressants maybe a good idea I have never gone with any medication, I find my clear muddled head gets me through  My treatments are surgery when tumours that keep growing are cut away and my bladder is dosed up with potions that have come to an end of working,  I have a stent in my ureter and the cancer is lasered at end  thoughts with you always stay strong  ... View more