Hi Santasilhpr sorry to hear of your cancer, I certainly hope your family arrangements can be made  Try not to let your knowledge take over with ‘overthinking’ I’m sure when a treatment. plan is in place you will have a better understanding.  kind thoughts with you  ... View more

Hi Cindi54 im happy your treatment went well and hoping you feel well  I came home from hospital today and feel good  my cancer is ‘complex and complicated’ as it keeps coming back and new tumours  and although the previous tumours have gone deep biopsies have been done as they come and go I have had intravesical chemo which I didn’t  work that’s the only way for chemo for bladder cancer as mine is in the bladder not on outside lining  the only chemo now to try is intravesical heated chemo which I think a big gamble as I’ve got a 20% success rate  I had 12 treatments  of BCG  which worked but no longer working. My treatments are cystoscopy and ureteroscopy Turbt  I was pleased I got a detailed written report of my cancer from my professor as he has consulted my case with professors in America and Asia  ... View more

Hi Cindi54 im good had my 9th cystoscopy ureteroscopy deep biopsies and laser yesterday have my catheter out at midnight and home tomorrow  my complex and complicated  cancer still not behaving like it should and I have a new tumour in a new place, some good news the three previous tumours are gone and laser was done on my ureter heated chemo may still be an option but with now only a 20% success rate I’m not so sure, professor wrote me a 2 page email which was really good to have all the information of my cancer as it is working slowly and not how cancer works, i don’t take it to seriously and delay things so I think he wanted to have it in writing how serious and urgent it is  but I’m good have no pain so is hard to grasp  I do wish you well with your treatment tomorrow and hope it is pain free  ... View more

Hi cindi54 hope your treatment goes well tomorrow and you don’t suffer those nasty after effects that have been fighting with you  You are such a strong lady full of kindness and I wish you good thoughts  you are so determined and strong  ... View more

Hi AB  I too have bladder cancer but a little different as female, mine is non muscle invasive too and has been for 18 months, although it is not performing as to  how cancer should, it is high grade T1G3 as I also have ureter cancer, but you should go with BCG I didn’t have any side effects other than on same day , a  bit tired and a a few aches, Panadol was all I needed and when I woke up in the morning I was fine  My professor has told me my cancer is complex and complicated as with the two and they are presenting different challenges constantly slowly  so try the treatments and there is some good info from cancer council  ... View more

Hi greg57 sorry to hear your procedure not going to plan hopefully all will be sorted and treatments and plan get together, kind thoughts with you. I’m in hospital after my 9th surgery in 18 months yesterday and hope to be home tomorrow. Once again my cancer not  performing how it should be and another tumour found in different place, but three previous tumours have gone deep biopsies done so wait and see, I’m good no pain could be home, but catheter not out till midnight  good thoughts with your procedure, try hard not to overthink anything and sometimes I think the less you know the better it is but your brain doesn’t seem to think the same and I find night the worse for brain overthinking  kind thought with you  ... View more

Hi Richard56 Im going along okay, and you certainly have been given a good plan, I hope it all goes along to the plan.  I went through 12 weeks of BCG with no major problems at all, I only ever had side effects on the day and they ranged from tiredness and aches Panadol was all I needed and when I would wake the next morning I was back to normal. Unfortunately the BCG did not work as the cancer is still there , am T1G3 and I don’t have many options left, my professor would like me to go through 6 weeks of intravesical heated Mitamycin chemo which I’m still not sure of, as no guarantee that will help with my ureter cancer and only 25% success rate with bladder cancer so big gamble, I am well but do need to be considering as my professor calls it the ‘gold standard’  bladder removal  ... View more

Hi Greg57  glad your procedure is over and all went well  hopefullg you will  know your treatment plan quickly and all starts well before you have too much time to think about it  I have a chronic sore knee at moment , and have put off my 9th surgery that was to take place on Wednesday to remove my tumours as best they can to see that I can take the Heated Mitomycin C chemo  as no point going ahead with a knee that I can barely walk with  ... View more

Hi cindi54 i thought that may have been the case, as they don’t won’t to take any unnecessary risks  ... View more