Hi @Cindi54 Thanks for your kind words I don’t know so much about bravery, but I simply never worried about something I had no control over fixing. I took control over my own cancer diagnosis, I made it clear from day one I would never ever be having radiotherapy, I did go through 12 BCG treatments, three chemo and nine cystoscopy and ureteroscopy and stents, I was told twice I would not see Christmas 2023 without major surgery something I never would do when I was in no pain or sick, I was only ever lethargic Christmas came and went we even went on holiday, 2024 came and I changed doctors my cancer has been complicated and pain free without medication other than Panadol. Coming up to two years and my cancer remarkably hadn’t spread into muscle, the reason I did decide I would go with the surgery was when in October I was told I possibly had six months and was told I would cope well with the surgery, or the only option was I would get sick and be in pain I had my robotic surgery early December close on two years since my diagnosis. The first four days in ICU were agony I simply wanted my eyes to close and never open again. I have had a good recovery and did have pain killers while in hospital, since the first day home I have only ever taken Panadol, I’ve amazed myself how well I have recovered and I was told I would have at least two infections, I have had no infections my eight wounds have all healed so well and stitches have all fallen out. I don’t have any pain not even really any discomfort. We manage so well with the ostomy bags and have never had any mishaps at all. A night bag gets attached at night and I can sleep on my sides now and it doesn’t really cause any problems it sits on the floor with a long tube attached. I see the Professor next week and will get all results but I don’t concern myself with them. Peter has been wonderful has done everything and will continue to do so. Hopefully I get all clear to drive again next week and will be able to go onto light duties, hopefully my diet will change and I can eat normally again as a Low Residue diet is so restrictive hopefully I get all clear to go back to pool and although I want to go back it’s a bit daunting. I don’t worry myself with what I can’t fix or have control over, many times I didn’t answer the phone and Peter would be rang by doctors as I simply didn’t want to know. I never went on these sites for a while as I felt with no pain or sick I felt a bit like a fraud, as so many in pain snd so sick from chemo, but as I found out bladder and ureter cancer so different and mine was simply not performing as cancer does and eventually became very complicated, but it has been good to make some contact as always was good to I talk with others, as the cancer demons were always in your head at night thanks for listening to all my ramblings and I wish you good thoughts and much success in 2025 on your cancer journey jennifer 💖💖💖💖
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