February
1 Kudo
Hi @greg57 No problem at all, that’s why the forum can be helpful , no pressure. I’m doing really well I see my Professor tomorrow and get all my final results , hopefully get clearance to drive and have a normal diet again and will be able to do light things again and hopefully hear the words ‘cancer is all gone’ we are going away to Lakes Entrance for five days, which will be my first big experience out since my surgery take care enjoy your holiday Jennifer 😘
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February
1 Kudo
Hi @Cindi54 Good news your biopsy results came back well. Maybe you will go through some BCG treatments as a precautionary treatment. good news you are back in your home with major renovations completed, hopefully the further renovations will come along slowly but it will be good to be home. give yourself time for your body healing and I’m sure your gentle exercise helps your mind as well. take care Jennifer
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February
2 Kudos
Hi @greg57 Don’t be so hard on yourself, what you can’t control or fix is not worth your energy in worry and anxiety .Enjoy your holiday no matter what the results life is good and you will move forward Jennifer 💖
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January
2 Kudos
Hi @Cindi54 Thanks for your kind words I don’t know so much about bravery, but I simply never worried about something I had no control over fixing. I took control over my own cancer diagnosis, I made it clear from day one I would never ever be having radiotherapy, I did go through 12 BCG treatments, three chemo and nine cystoscopy and ureteroscopy and stents, I was told twice I would not see Christmas 2023 without major surgery something I never would do when I was in no pain or sick, I was only ever lethargic Christmas came and went we even went on holiday, 2024 came and I changed doctors my cancer has been complicated and pain free without medication other than Panadol. Coming up to two years and my cancer remarkably hadn’t spread into muscle, the reason I did decide I would go with the surgery was when in October I was told I possibly had six months and was told I would cope well with the surgery, or the only option was I would get sick and be in pain I had my robotic surgery early December close on two years since my diagnosis. The first four days in ICU were agony I simply wanted my eyes to close and never open again. I have had a good recovery and did have pain killers while in hospital, since the first day home I have only ever taken Panadol, I’ve amazed myself how well I have recovered and I was told I would have at least two infections, I have had no infections my eight wounds have all healed so well and stitches have all fallen out. I don’t have any pain not even really any discomfort. We manage so well with the ostomy bags and have never had any mishaps at all. A night bag gets attached at night and I can sleep on my sides now and it doesn’t really cause any problems it sits on the floor with a long tube attached. I see the Professor next week and will get all results but I don’t concern myself with them. Peter has been wonderful has done everything and will continue to do so. Hopefully I get all clear to drive again next week and will be able to go onto light duties, hopefully my diet will change and I can eat normally again as a Low Residue diet is so restrictive hopefully I get all clear to go back to pool and although I want to go back it’s a bit daunting. I don’t worry myself with what I can’t fix or have control over, many times I didn’t answer the phone and Peter would be rang by doctors as I simply didn’t want to know. I never went on these sites for a while as I felt with no pain or sick I felt a bit like a fraud, as so many in pain snd so sick from chemo, but as I found out bladder and ureter cancer so different and mine was simply not performing as cancer does and eventually became very complicated, but it has been good to make some contact as always was good to I talk with others, as the cancer demons were always in your head at night thanks for listening to all my ramblings and I wish you good thoughts and much success in 2025 on your cancer journey jennifer 💖💖💖💖
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January
2 Kudos
Hi @Richard56 Good that your skin cancer treatment is happening quickly, such a relief for you, your cystoscopy is very close, so sorry you are going through so much pain, from what I do know it affects men differently, hopefully your cystoscopy will clean your bladder out, biopsy are always done in this procedure do don’t concern yourself worrying about, them, the last two years I’ve had nine cystoscopy and ureteroscopy and stent insertions and changes with up to four biopsies each time always part of the procedure, I always have been in hospital overnight and occasionally two nights and each time pain free never needing pain medication, try not to think too much into anything . you and Cindi certainly are fitness machines, not my thing at all, never has been, but I admire you both how you are so focused, I’m a simple walker and like to go to the pool something I haven’t been back to yet, but hopefully when I see my Professor I will be able to get back there soon and hopefully driving again and I will be able to start light things as well, I’m hoping my diet will change as so many restrictions not a lot I can eat as I’ve been on a Low Residue diet good thoughts with your upcoming procedures and good luck moving forward, it’s going to be a good year for you and Cindi all my good wishes and love 💖💖💖 jennifer
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January
1 Kudo
Hi @Richard56 Thank you for thinking of me, I had a good Christmas, was in early recovery but my family had everything under control. My husband is wonderful and has been doing absolutely everything,, only two weeks till I see Professor and will get back to light things and start cooking again and get clearance to drive, and take a lot away from Peter, he has been my absolute rock but I know he will still be carefully watching me. hopefully your Cystoscopy will come back good, I never had any bladder pain at all , I went through six weekly rounds of BCG then after few weeks a cystoscopy and a few more weeks I started another six weeks of BCG, although it didn’t completely work for me, I guess it gave me time Dont Put too much pressure on yourself and be careful your not over doing your fitness regime, but it’s good that it is so good for your well being I simply take everything day to day but must admit I’m looking forward to final report from Professor take care and good luck going forward Jennifer 😘
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January
1 Kudo
Hi @Cindi54 That is great your CT results and no cancer, and no more chemo, cystoscopy although one or two nights in hospital a pain free surgery procedure. sounds like your in for a good year. The tiredness hopefully from chemo and your dose of covid, take it slowly for a good recovery my husband is wonderful as he is doing absolutely everything, which is also a little hard on me watching him do so much, we were told it would be like this for eight weeks then I can slowly start to do things but still very careful about lifting anything. We had our district nurse today, she checks all my wounds are healing ok, I still have lots of stitches, I see my stoma nurse next week and if they haven’t all gone she will possibly remove them as it will be five weeks since surgery. We will also ask if we can cancel district nurse as we feel we don’t need her. i think you can be optimistic that you are going to have a great year and I know I will too, although I haven’t got my final report from my surgery until 4th February, I do know all the cancer was taken out. looking into a great 2025 jennifer 😘😘
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January
1 Kudo
Hi @Cindi54 so glad your finally covid free and are feeling much better. Will be good to get CT results and hopefully they are good results the ones you need. Don’t put pressure on yourself to get back to the things you love, it will happen naturally your body will let you know. And thank you so much for your kind thoughts with my recovery. its a long road for me, I’ve been told a good six months, I’m four weeks down with four to go of doing absolutely nothing, the last few days I have done a few little things but I have a husband who strictly watches. I had my final injecting myself today with DVT medicine so a win. I’m doing really well and although not walking to far all going so well take care and good luck with results Jennifer xx
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December
1 Kudo
Hi @Richard56 Gosh, I’m so sorry with your skin Cancers and melanoma, hope they are all managed quickly and your treatments all go along well I had a lovely Christmas, I was home from hospital earlier than anticipated and although I’m not to do anything for eight weeks, I am going really well and feel great. We have a district nurse twice a week, although we don’t think we need her it was a direction from hospital and stoma nurse as I was home from hospital earlier than anticipated. I see my nurse again on 9th January and will ask if we can cancel. 2025 should be a great year, I get my report early February, I’ve been through the major surgery and a six month recovery required and cancer free, although still to see report I do wish you a good treatment plan and stay strong kindest thoughts with you jennifer xx
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December
2 Kudos
Hi @Cindi54 I’m so sorry with what must feel like you have been kicked in the guts again, especially to land back in hospital I do hope you can feel better quickly, you are having such a rotten journey it has to get better and you are so incredibly strong alwsys looking on he bright side stay strong incredible fighter jennifer 😘😘😘😘
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