Hi Richard56 thank you for your kind words  I do realise my only option is major surgery and I think I’m at peace with this is the way to go, well getting there  I wish you well with your treatments and decisions best for you  we are lucky we have Cindi54 as a great support of encouragement  ... View more

Hi Cindi54  Your a great support and to many,  your so right  people retreat as they simple don’t know what to say, they don’t need to say anything and family are the worst, same has happened to me with my brother and father , it does make us feel contagious, I have a wonderful husband who is my absolute rock  have a good week 💖 ... View more

Hi Cindi54 thank you, you always have lovely words to say  you certainly have  gone through a not very pleasant treatment, I do hope you are starting to feel better    hopefully I will have an appointment this week or next with biopsies results and best way forward, and the professor does give options, although only two are left with one relying on biopsy results to see if even an option, we are looking at major surgery as best way forward   how good would it be to be in same states for a moral support catch-up, I feel to be both going through the worst times of our lives which no one can truly understand unless you are in that situation, my cancer and surgeries are so ‘unseen’ as I’m always told how well and good I look, which does nothing for how l actually feel and to have someone going through the same would be such a great support   have a good week lovely you are such a strong support and strong human 💖💖  ... View more

Hi Richard56 Thanks for your kind words, we are all going through this in our own way with different cancers in different ways  BCG gets your immune system working so  your immune should fire up and may help you a lot  I do have aggressive T1G3 bladder cancer and ureter cancer with a stent, I have no pain and wouldn’t even think I have cancer and the reason I delay surgeries as I possibly don’t take it too serious, however that doesn’t stop my brain at night thinking and I do know I have to more serious as my options are limited  wishing you well with your treatments  ... View more

Hi Richard56 thats is good your treatment is starting  I went through 12 treatments weekly of BCG and had no problems at all just a little achy and tired after but the next morning all good, my immune responded really well and worked slowly  it’s a good procedure  so good thoughts with you  ... View more

Hi cindi54 haha!! No not at all am I been kicked around, my professor is wonderful and is doing his best for me, I guess I make it hard for him as I don’t take it seriously  I’m not having any new treatments, the three cystoscopy ureteroscopy and Turbts and stent changes I’ve had this year are my treatments  my cancer is also high grade aggressive being a T1G3 As my cancer constantly returning I do have to look at major surgery as 20% success I feel is not worth considering, but like you say, who knows unfortunately as my professor is telling me my waiting is up!  I am definitely not positive as I feel the devastation when this is a let down and I’m absolutely not negative I simply  like to sit in the middle and hope for the best  and simply try hard not to overthink  ... View more

Hi Santasilhpr sorry to hear of your cancer, I certainly hope your family arrangements can be made  Try not to let your knowledge take over with ‘overthinking’ I’m sure when a treatment. plan is in place you will have a better understanding.  kind thoughts with you  ... View more

Hi Cindi54 im happy your treatment went well and hoping you feel well  I came home from hospital today and feel good  my cancer is ‘complex and complicated’ as it keeps coming back and new tumours  and although the previous tumours have gone deep biopsies have been done as they come and go I have had intravesical chemo which I didn’t  work that’s the only way for chemo for bladder cancer as mine is in the bladder not on outside lining  the only chemo now to try is intravesical heated chemo which I think a big gamble as I’ve got a 20% success rate  I had 12 treatments  of BCG  which worked but no longer working. My treatments are cystoscopy and ureteroscopy Turbt  I was pleased I got a detailed written report of my cancer from my professor as he has consulted my case with professors in America and Asia  ... View more

Hi Cindi54 im good had my 9th cystoscopy ureteroscopy deep biopsies and laser yesterday have my catheter out at midnight and home tomorrow  my complex and complicated  cancer still not behaving like it should and I have a new tumour in a new place, some good news the three previous tumours are gone and laser was done on my ureter heated chemo may still be an option but with now only a 20% success rate I’m not so sure, professor wrote me a 2 page email which was really good to have all the information of my cancer as it is working slowly and not how cancer works, i don’t take it to seriously and delay things so I think he wanted to have it in writing how serious and urgent it is  but I’m good have no pain so is hard to grasp  I do wish you well with your treatment tomorrow and hope it is pain free  ... View more

Hi cindi54 hope your treatment goes well tomorrow and you don’t suffer those nasty after effects that have been fighting with you  You are such a strong lady full of kindness and I wish you good thoughts  you are so determined and strong  ... View more