Hi AB  I too have bladder cancer but a little different as female, mine is non muscle invasive too and has been for 18 months, although it is not performing as to  how cancer should, it is high grade T1G3 as I also have ureter cancer, but you should go with BCG I didn’t have any side effects other than on same day , a  bit tired and a a few aches, Panadol was all I needed and when I woke up in the morning I was fine  My professor has told me my cancer is complex and complicated as with the two and they are presenting different challenges constantly slowly  so try the treatments and there is some good info from cancer council  ... View more

Hi greg57 sorry to hear your procedure not going to plan hopefully all will be sorted and treatments and plan get together, kind thoughts with you. I’m in hospital after my 9th surgery in 18 months yesterday and hope to be home tomorrow. Once again my cancer not  performing how it should be and another tumour found in different place, but three previous tumours have gone deep biopsies done so wait and see, I’m good no pain could be home, but catheter not out till midnight  good thoughts with your procedure, try hard not to overthink anything and sometimes I think the less you know the better it is but your brain doesn’t seem to think the same and I find night the worse for brain overthinking  kind thought with you  ... View more

Hi Richard56 Im going along okay, and you certainly have been given a good plan, I hope it all goes along to the plan.  I went through 12 weeks of BCG with no major problems at all, I only ever had side effects on the day and they ranged from tiredness and aches Panadol was all I needed and when I would wake the next morning I was back to normal. Unfortunately the BCG did not work as the cancer is still there , am T1G3 and I don’t have many options left, my professor would like me to go through 6 weeks of intravesical heated Mitamycin chemo which I’m still not sure of, as no guarantee that will help with my ureter cancer and only 25% success rate with bladder cancer so big gamble, I am well but do need to be considering as my professor calls it the ‘gold standard’  bladder removal  ... View more

Hi Greg57  glad your procedure is over and all went well  hopefullg you will  know your treatment plan quickly and all starts well before you have too much time to think about it  I have a chronic sore knee at moment , and have put off my 9th surgery that was to take place on Wednesday to remove my tumours as best they can to see that I can take the Heated Mitomycin C chemo  as no point going ahead with a knee that I can barely walk with  ... View more

Hi cindi54 i thought that may have been the case, as they don’t won’t to take any unnecessary risks  ... View more

Hi cindi54 so sorry to hear of your  ordeal, hope you are feeling so much better and good luck with your next treatment, you certainly have been through a lot  kind thought with you  ... View more

hi greg57 wishing you all the best for Wednesday. And I know what it is also to bail, I did the same with my first cystoscopy Turbt, I left the hospital but my husband still waiting and he took me back as they were looking for me, the anxiety of the waiting gets to you so much especially when your at hospital so early and you wait and wait  all will be good and you will be fine  good thoughts with you  ... View more

Hi greg57 Im pleased you are now getting the help and things are going along a lot better. And you’re right about a roller coaster , I feel my brain is in a constant tumble dryer . I  was diagnosed with  cancer in December 2022 and five days before Christmas had my first of eight surgeries with the last in August this year, I am well and we are going away for a week to Perth tomorrow which will be a pleasant change.  Take care and kind thoughts with you. ... View more

Hi greg57 so sorry to hear of your struggles and anxiety, i am  happy you are getting the support you needed and hopefully your claim will be processed quickly so you have one less worry , this ‘C’ letter diagnosis certainly plays with our mind as much as our body and life keeps moving on , hopefully things are falling into place and your coping much better, kind thoughts with you  ... View more