Hi Cindi54 im good Cindi I am completely painfree and only really ever had any pain last year back and right lower pain but was told all stent related and all I needed was Panadol , I have never ever had blood in my urine only microscopic blood my symptoms were I needed to pee  all the time and I still do but not quite as often. Bladder cancer is pretty much a male dominated cancer from prostate and ureter and bladder cancer together in a female not common. But I am good I have gone through 12 rounds of BCG and 3 intravesical chemo and had no after affects other than tiredness  nobody would know there is anything wrong with me or neither would I, if I didn’t know so you can understand my reluctance to want to go through anything. And yes if I was to go with cystectomy I will need to have a stoma bag. I have thought about going that way but as I’m well it’s a big surgery and I have defied all odds so far. The Heated Mitomycin C is only successful in 25%. Life is good and I think I may be happy to gamble on this life journey  I hope all going well with you and all meds working for you now  big hugs and thanks so much for the communication something I’ve really never had   ... View more

Hi Elroyj i am so sorry,  such a terrible ordeal you are both going through, and absolutely know that waiting game, it messes so much with your head, and we do know results take time and then doctors need to go over them, and I totally know what you are going through, my kindest thoughts with you hold each tight and try as hard as it is not to think to much about what is going on, simply enjoy the now 😘 ... View more

Hi Susana  thank you for your reply  I have looked through Cancer site, unfortunately cannot find information on Heated Mitomycin C  I had three treatments of intravesical Gemcitanine and Docetaxol last year  the Heated Mitomycin C is the last option for me before the ‘gold standard’ cystectomy I am high grade T1G3 bladder and ureter cancer with a stent  I am well and all good    ... View more

Hi Cindi54 it has been so nice to talk with a female  especially with ureter cancer, I haven’t heard it called bladder cancer, but I do have bladder cancer High Grade T1G3. I don’t have any kidney cancer and my  bladder cancer is not in muscle, the reason my ureter has not been able to be resected is too risky as I have bladder cancer and cells could  possibly ‘field’ outside bladder, the ureter cancer is at bottom working its way up, I have had a stent in since December 2022 I have it changed every couple of months, the stent is to keep it open, I have no problems at all wouldnt even know it was there  apparently not common for ureter cancer and bladder cancer together and even more uncommon in females  the Mitomycin C chemotherapy is used in bladder cancer but heating it is very expensive and not used that often  my case I’ve been told many times is complex and complicated and  I know Ive only got two options left  the Hot Chemo with a 25% successful or ‘gold standard’ bladder removal then ureter would be resected and reattached  I do hope your chemo is going a lot better and your feeling a lot better  😘😘 ... View more

Hi Cindi54 so good you went through chemo a lot better I hope this week goes well for you Im not really sure how lymphovasular is bladder cancer I haven’t seen or heard that anywhere but as bladder cancer predominantly a male cancer good to talk with a female  who also has bladder cancer  I spoke with my professor today and he is sending me some info on mitomycin hot chemo.  I understand hot chemo is very expensive and as only a few places in Australia  do it, therefore not that common. I don’t want to go through it as a bandaid solution as the chemo has to reach and go into my ureter and there  is no guarantee this will happen, as my professor has told me gold standard would be a total Cystectomy and I  do realise this is what I should be going with as a Highgrade T1G3 and as I have been told multiple times my case has been very complex and complicated. I have a stent in my ureter which I have changed every very months, I have gone through 8 surgeries since December 2022 of TURBT uterscopy biopsies Cystoscopy. 12 rounds of BCG and 3 of intravesical chemo, which is how bladder cancer is treated with chemo and if I ever thought I was going to die it was when two days after my third chemo I came down with pneumonia when I was so sick  we are going away so in a couple of weeks and when we are back I  will need to make a decision as if I go with hot chemo I need to have another TURBT surgery to remove the tumours, to see if I’m even suitable to go with the hot chemo  I wish you good thoughts your treatments have you feeling a lot better  ... View more

Hi Cindi54 I did do 3 rounds of intravesical gemcitanine with docetaxel chemo last November with no side affects, the hot chemo is not common and only a few places do it in Australia, although not a problem for me as Royal Melbourne is one of them, there is not much information on hot chemo and I need to know more, I had 12 treatments of BCG immunotherapy with lots of information on this. I have bladder cancer along with rare ureter cancer and as I’m only on two options now I need to know more  ... View more

Hi Cindi54 intravesical is directly into bladder via a catheter and drained out again after two hours, as not in your body a reason for no side affects, hot chemo same way and then heated up, but I’m not so sure I will go ahead with this.  I'm so sorry you are having such terrible side affects, certainly doesn’t make treatments easy to go through  I do give you my kind thoughts and wish you well Jennifer      ... View more

Hi Cindi54 I had Gemcitainine and Docetaxel  used together intravesical for bladder cancel  3 treatments and had no side affects what so ever,  as this is only in bladder it does not affect any other part of your body. Don’t know if this helpful at all    ... View more

Hi BadWolf73 absolutely family and friends come along for the free ride, unfortunately many soon jump  off !!! ... View more