August 2010
Thank you for your kind words, yes the one good thing is we have time to say goodbye, I still think it is so hard for our carers to keep carrying on . I think it would be easier if the deterioration in health was gradual instead of one good one bad day. I have been on the other side too and I know it broke my heart to see my mum and dads like this, so to all you carers out there, we love you all and admire what you do for us.
S
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I wish I could make it easier for them, it is not fair that they have to be in pain because I am sick. Their hope gets built up when tumours shrink , just to be slammed down when it comes back quicker than we thought. They don't deserve this!!!Human power for hope is such that it will always take over despite what we know to be true. It is so hard each time to tell them that it is following its course , the only unknown is how long! They say I have to do all the treatments just in case, but it hurts so much to see their pain. I think perhaps quicker would be better for all.......
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August 2010
Thank you for that Don,
I have recently been contacted by the Vic Palliative care in my area and they will be coming to see me soon.
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July 2010
Well remission was short lived but the holiday was sooooooo worth it. Just back from stay at the hospital, had radiation and starting chemo again on Monday.........go from there.
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July 2010
Thank you Julie for your wonderful story. It makes me see how fortunate I am to have come trhough this first round of chemo without the problems you had. I think it will make it easier to carry on because if you can get through all of this and still have a smile then we can too, or at least try. Hope you have many more years ahead.
xoxo
S
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July 2010
There are no effects apart maybe from a bit of confusion. You get used to them pretty qhickly, they take away a lot of the pain. There are different strengths, and I cannot tell you effects when they are at full strength as I have not had those. I was given them as part of pain management programme but as my tumours shrunk I no longer needed them as I had no pain. Hope this helps you. Your oncologist can tell you effects.
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July 2010
It is not selfish to want your mum back the way she was, I am sure she knows you love her, and regrets will not help. We are only human and it takes a lifetime to know someone as much as we can know them. You were only given 23 years and that is not long enough to develope the friendship that can exist between a mum and a daughter. I took much longer with my mum, and our understanding of each other grew much quicker when she got sick and I took care of her. Just keep loving her and tell her, because deep down she is still the person you love. If she is in a lot of pain, maybe you need to talk to the doctors and see what they can do.
My thoughts are with you.
S
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July 2010
As we know, it is when we need them that we discover who our true friends are. I have discovered I have 3 true friends in two different countries, I am so fortunate, and yes I have some that have distanced themselves since diagnosis, I do not mourn them as the ones that remain make up for the loss in many ways. These friends were not scared or uncomfortable to ask questions and were good listeners. They do not pretend this is a temporary illness that we can beat everytime. This is what hurt the most, when "friends" dissmiss the severity of the illness because they cannot cope with it. So, nurture and treasure the true friends and have special times with them and leave the rest behind.
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July 2010
It is for the good days that we go through with the treatment, and when we have them, it makes it all worth it. We need more "great day stories", thank you for this one.
S
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