Hi Lindy65,   I can hear the worry and weight of the enormous decision you are facing. I can see also you have asked the community in a different forum so I'm just adding a link to that post here to help your question reach more people.   I'm sure that hearing from someone who may have experienced this surgery or perhaps knows of someone who has undergone this surgery would be reassuring. Understanding how they coped before, during and after the surgery would help you to process your decision and possibly provide some clarity in it all for you. I am hopeful someone in the community might share how they have coped with this type of surgery.   You may also wish to consider counselling support to help you work through your decision or for preoperative support should that be the decision you choose. Your GP or health professional will be able to discuss options with you or you can reach our team of health professionals on 13 11 20 and they will be able to walk you through the process of finding counselling support.    Stay strong Miranda CCNSW ... View more

Hi @KitKat5    It can be daunting trying to work your way through all the decisions you face after a cancer diagnosis. Different cancer types and prognoses require different treatments, and everyone's response to treatments is unique. It's important to consult your oncologist and medical team who understand your specific situation to get the best advice on what might be suitable for you. Have you had the opportunity to talk to your doctors about using cold capping yet?    Here is a resource that might helps also.    Stay strong, Miranda CCNSW ... View more

Hi @Milo01    Thanks so much for the update on your progress. It's fantastic news that you have found a new dietician and that are managing to eat more food now. Sometimes it is just a perspective shift that can change things, in this case the switch to food being primary and the nutritional drinks being supplementary at this stage of your journey. Sounds like you are trying different things to see what works and listening to your body. Pasta for now sounds great. It can be such a challenge to think and make decisions through the brain fog - keep taking it one day at a time. I'm sure the extra drinks you have will happily sit in your cupboard as supplementary back up for now as you work through increasing your food intake as a priority.     Keep going and stay strong, Miranda  CCNSW ... View more

Hi @KitKat5    I wanted to check in and see how you are going with your cold capping? Has it offered you any relief? It can be challenging making decisions as to the best thing to do in any moment as you navigate treatment.  I wonder if anyone else in the community has anything they could also share about their experience with cold capping?   If you would like to talk to someone about what you are going through or ask any questions, please call 13 11 20 to speak to one of our health professionals who will be able to offer some words of guidance and support.   Stay strong Miranda CCNSW   ... View more

Hi @Cindi54 and @Di57    It's so wonderful to see the support you're giving each other during your treatment journey's. That's exactly what this community is all about, sharing the ups and downs of what is an extremely tough, challenging and often dark journey. Knowing you're not alone in it all can provide moments of light when you need it most.    I hope your recovery from surgery goes well Dianne.    If you ever have any questions or feel you might like to explore possible support options, remember you can call 13 11 20 and talk to one of our health professionals.    Stay strong Miranda CCNSW ... View more

Hi @Richard1    That's such wonderful news! The strength and resilience you found during your fight carried you through some dark times I'm sure. It must be such a relief to have faced your diagnosis, the treatment and to get that news is amazing. I'm so happy for you, as I'm sure many others are also in your world and here in the community. You've been on a journey that so many understand deeply. Thank you for being such an inspiration and bringing hope to others.    Take care, Miranda CCNSW ... View more

Hi @Lesley63    Welcome and thank you for posting your first message here in the community. It can be very daunting sharing how you're feeling and asking questions. I'm sure other community members will reach out with words of support in their way - you're not alone.  Making treatment decisions and wondering if you're doing the right thing is natural given the gravity of what you're facing. Here are a couple of resources that might help you.... this one talks to the talc procedure you mention. Here also is another resource on immunotherapy that may help.    If you would like to talk to one of our health professionals please contact our information and support service on 13 11 20 and they can talk you through any questions you might have.    Stay strong, Miranda CCNSW ... View more

Hi @Milo01    Thanks for sharing so openly your struggle with food, nutrition and eating enough post treatment. It can be a very real struggle on a daily basis and I can certainly hear your focus and concern on eating enough on a daily basis to prevent too much weight loss and maintain strength. I'm sure you are not alone in this struggle.   It's fantastic that you have read the Cancer Council booklet, Nutrition and Cancer booklet already. Have you been able to speak to your doctor or dietitian to recommend foods to eat for energy and protein recently? They may be able to guide you on additional options you may not have considered yet. Your strong mindset and selfcare is evident - keep going and stay strong. Of course, you are always welcome to call our team of health professionals on 13 11  20 to discuss support options also.    Perhaps someone else in the community can offer suggestions on what has worked for them also?   Take care Miranda  CCNSW   ... View more

Hi @gretahay    Thanks so much for posting and sharing the sad news of your dad's treatment and prognosis. It's extremely difficult to face news like this, and to reconcile his experiences and sudden changes in his treatment outcomes. I'm sure others here in the community will be able to offer support as you find your feet with this all.    Please also know that the team of health professionals in the 13 11 20 team are only a phone call away. They are available to talk to you about support and questions you may have. Here is a resource that may also be of help to you.    Take care Miranda     ... View more