It is a good sight ,lots of understanding people here. It is a strange emotional time when you are first diagnosed. So many different feelings and it's easy to feel that nothing's the same and you are in a different place and it's not quite real. ... View more

I will check out your blog soon. I am sorry to see that you must be having such a bad time.I was diagnosed with Stage 3 adenoid cystic carcinoma 2 years ago.This cancer is rare and unpredictable but I am ok . It is a type of adenocarcinoma. I will reply again after I've read your blog. ... View more

I am sorry you are having such a bad time. In my opinion if the pain is from radiation damage it is the radiation/oncologist's job to find solutions. It seems that they can be so uncaring at times. Your surgeon sounds more caring. I know this doesn't help but the only other thing I can suggest is pester him/her more assertively or talk to your gp. It appears that you have and are doing all you can from their advice so far. And you are not a whinger. It must be more difficult with your husband injured. How did that happen? That sounds painful to me. I hope you get more practical help. You should not be in pain now. Love, from your friend ... View more

Sorry for what you are going through ? What are you taking for nerve pain?I take Lyrice,75mg in the morning and 150mg at night.I hope to grt the night dose down to 75 as well. It does make me feel dopey but doesn't help me sleep. I found 2 Ativans at night helps me get to sleep and for longer. The gp doesn't know I take these .When I run out I will try to get some Loraxapan .It gives me 8 hours sleep. Dctors are often agaigsst it as it's addictive but I want to develop dood sleeping habits. Are you sleeping ok with all your problems? Sorry to talk about me so much,didn't mean that ... View more

Good on you for all the support you give to your families. Good luck for thr ride too. ... View more

Thanks, Rosco .I will write that on my calendar. Silly was a nickname someone called me in high school and no , name is not Sally . ... View more

I hope she gets good results. ... View more

All the best. If people ask tricky questions remember you can tell what you want to tell and keep what you want to yourself . Maybe work out beforehand what you want to say so you won't be caught offguard. You will know those who are genuinely caring and concerned and those who may be curious. Maybe you want to tell all you know mmaybe not. I agree that working could help take your mind off the waiting . ... View more

I am glad things are looking up. I hope your dad's friends do visit if that's what he wants.Sometimes people are reluctant because they feel the sick person wants privacy and sometimes they do.Some people don't like being seen at their worst . You have been great . ... View more

I think many would agree. ... View more