I had also been told mine wasn't cancer until after it was removed and biopsied. It had been in the back of my mind for months that it could be cancer. Mine is also very rare.My ent had never seen it before and my oncologist had only seen it once before .
In February it will be 2 years since diagnosis and I must say the initial emotions are all gone .
The staff where you have radiation will be so helpful .Ask for any help you need,including counselling ,if you feel the need. I ,too, have a head and neck cancer . I felt better once radiation started and I hope you do too.
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