I had surgery in my nose and tear duct in April ,2010 and have had neuropathy ever since . It was not from radiation or chemo . I was told about Lyrica about 3 months later and have taken it since then . It has lessened since then so I'm taking a lower dose . The pain and annoying sensations are in part of my mose ,teeth ,around one eye and head as various times and intermittently . It is worth talking to the doctor about this medication . ... View more

I'm sorry to hear that you've had to go through all that . Here's hoping the new drug does what you need . ... View more

I was diagnosed over 3 years ago with an incurable cancer called Adenoid Cystic Carcinoma . During those first few months I had wondered the same thing . I now believe that from the moment you know you have it till the moment you die you are surviving . ... View more

How did it all turn out ? Sorry I didn't ask sooner but I just found this post again . ... View more

Marty posted somewhere that there is a support group for people with head or neck cancer in the Qld Cancer Council building at Bowen Hills on the second Tuesday every month at 6: 30 pm. Call the Cancer Council to check or go to on their Facebook page . ... View more

I'm sorry that some people are so insensitive to your feelings in this regard . Some forget to imagine what it must be like for others . We all have probably made tactless remarks at times but apologies are in order . ... View more

I'm sorry about your dad's diagnosis . I don't have any personal experience of this ,except that I had an aunt who died of lung cancer . I don't know what stage it was at diagnosis but she had lost a lot of weight rapidly before it was known . She had one collapsed lung and a mini stroke before they diagnosed her but they suspected lung cancer by then . I'm not aware of what treatment she had in hospital but only that they didn't expect her to live long . She lived for many months longer than expected . ... View more

Marty , One group on Facebook for head and neck cancers is : Adenoid Cystic Carcinoma -Australia Support . This cancer is mostly a head and neck cancer ,but some have had tumours beginning elsewhere .It is a closed group ,in that what is said is not viewable to the public. It is an online group ,on Facebook but some members have met others . We are planning a get together for March next year ,in Brisbane . The plan is to meet in a different state annually . Whenever I meet other Australians online I always tell them about Cancer Connections too . I use international sites as do some other Australians . ... View more

Marty,I've looked at your Facebook group and told others in an Aussie group for Adenoid Cystics about it . I think it's difficult for some to get to groups as most don't live close enough . Still ,if any new Brisbane members join our group I'll dirct them to your page and group . ... View more