Hi Kevin, i just wanted to say that you are doing really well mate! i would like to share with you part of my cancer experience in the hope that it may give you some more strength to keep fighting on your journey... I am a young adult cancer survivor myself of 5 years. I was diagnosed at age 28 in 2002 with acute lymphoblastic leukaemia. My treatment protocol was 54 weeks of chemo....I spent 8 and a half months on and off in a hospital bed getting a battering... Throughout my treatment (at the Royal Melbourne Hospital) I experienced great isolation and a lack of psycho-social support. I was being treated on the adult ward, surrounded with elderly patient ... View more

hey you know what we need? .... we need a blood cancer specialist to come onto this website disscussion topic and answer our questions. I wonder if the CC have plans to do this some time in the future? ... View more

Hey there, good questions... sounds like you are really alone... have you started your chemo yet? nikki ... View more

oh my god...that is the sweetest story ever! ... View more

Hi, any one interested in chatting about leukaemia related issues? n ... View more

Hi Butterfly, What wonderful news! GOD it must be such a relief..... CONGRATULATIONS!! I did not have any radiation, so sorry can not help you out there. I hope you do get some input from others who have or are having similar treatments and issues to yours.   best Nikki ... View more

Hi Mikey, thanks for the super fast reply... I am happy to chat about any thing related to luekaemia with others. I find it rare to meet people at conventional support groups with luek. So I thought this would be a great way to hook up. cheers!   ... View more

Jaxin is the most gorgoeus boys name! Congratulations to both you and Donna. My partner and I hope we can have kids soon (depending on the effects of my treatmnet and my fertility), as I am 35 in April. We have been trying to think of unique boys names and its so so hard. You have both come up with a winner!   best, nikki ... View more

hey Lisa! hows life going for you? i am reading and listening and reading and listening to all my interviews.... great fun! awesome stories. did you manage to miss getting the flu? i got it... it was bad. has kev been fishing or surfing since we visited you? how has that support group beeen going in coffs?   nx ... View more

Hi, I too found myself asking very similar questions when I was first diagnosed and actually they continued throughout my whole treatment. I drove my doctors nuts! It is good you are curious, as that shows you want information and knowlegde and that equips you with power and a sense of control in a time when your everything in your life is turned upside down. Over the years I have realised that my specialist doctors all did the best they could for me. There is such a range of information and treatment types they can give to us patients... and yes they are experts in what they do. However, I also realsied that there is simply not enough money for research and that trials take so long to conduct and they are so so so expensive to do. There appears to be alot of information out there, and at times, we the patient become the expert and can often inform our specialists. My recommendations are keep the conversation flowing between you and your sepcialist at all times, query them and fight hard to get access to information about your treatment, as you are the one on the receiving end, also requesting a bit of empathy and emotional assistance  from your doctors, reminds them that you are human. Best of luck and please lets us know how you get on with it all. Best, Nikki ... View more