About Nikki_YAC

PeaChez

Dearest Steve... I also had no support during chemo and after. I've lost nearly all my friends. Not one has asked how I am and how I'm doing. Not only did my friends desert me my parents also did. Kicked me out of the apartment they had for me while going through chemo...they said I complained to much and shunned me even more for taking pain pills. I had become a junkie to them. Why can people not understand this horrible disease? I am 6 months out of chemo and still feel i haven't gotten a clear answer if is gone. every time i went to dr. It was everything looks great only to go into the hospital for SOB and be told there were three lymph nodes they were still looking at. My symptoms have started again. I feel abandoned from every corner. Dealing with cancer i thought would be the worst..no..now i have neuropathy and absolutley miserable. I'm scared and fed up that i may never get back to normal.

MissRen

Hi Nikki,That is fantastic! I imagine it was a hard decision for you, but there must come a time when you do things for yourself and yourself alone. I recently had my first moment where I forgot that I had cancer and it was so liberating. I forgot that I was diagnoses, I forgot about the surgeries and treatments and it was great, it helped me enjoy being in the moment and enjoying life. Thanks for all your support and kindness. Good luck with whatever you choose to do ( :

We all need a break from something sooner or later Nikki, and cancer is a subject that really does tend to take over all of life. If you need to give it a break, then go with the knowledge that it is the right thing to do and return if or when you feel you want to. There will, sadly, always be more people with cancer arriving or leaving and you cannot be everything to everyone without losing something of yourself. I have run a Cancer Corner for over 5 years in eBay Community Spirit and even so, there are times I let a few days go by and go read a book or do something else. I survived cancer 12 years ago, but all of us who have had it can contribute something without burning ourselves out. Go and enjoy your little one and life outside cancer with blessings 🙂

Nikki_YAC

My apologies.... The initial flyer had the incorrect address on it (although it is a registration only workshop so we could have passed on the new address). It is Level 10, 100 Pacific Hwy, Nth Sydney NOT Miller st.

Nikki_YAC

Hi everyone! Just a quick note to anyone who is in the Sydney area.... The Cancer Council NSW is running a pilot program at the end of this month based on workplace issue's and cancer. Anyone who can make it is welcome to go. Its free and I hear that there are to be some great speakers involved. Full details are now up on the homepage of the Young Adult Social Group on Cancer Connections. Best, Nikki

Sailor

Hi Carer Go to the web and google Carers Australia that will put you in touch with Carers Australia and their state branches. They are a great organisation and have a lot of practical information for carers. They get a fair amount of government funding so are well resourced to help people in your situation. They can tell you what you are eligible for through centrelink and what other help is available out there in the community. The cancer helpline 13 11 20 is another great resource. Maybe the managers of this website could have a section on useful websites to visit, or an FAQ to provide this type of information, which I know I have put into many responses to enquiries such as yours. cheers Sailor Never go into strange places on a falling tide without a pilot. Thomas Gibson Bowles

Nikki_YAC

A conference was convened to discuss the impact of childhood cancer on the quality of life for the child, adolescent, and young adult cancer patients from diagnosis through treatment to survivorship across the lifespan. This program features information that will benefit healthcare professionals, educators, school professionals, and parents of children with cancer. You can learn from a diverse group of presenters through video presentations, slides, and video excerpts from A Lion in the House, about the unique perspective on the overall impact of childhood cancer including • Surveillance of the late effects of cancer • Psychosocial issues of the cancer survivor and their families, especially siblings • Strategies for meeting the needs of paediatric cancer survivors and their families Follow this link (you may have to register 1st)to access it in full http://www.cancereducation.com/cancersyspagesnb/a/lls/llssj0901/index.cfm?rid=127

flight

Hi Nikki, There is the Late effects clinic at Peter Mac in Melbourne. There is also one in South Australia but I can't remeber which hospital it is located at.

Nikki_YAC

As many of you would know, I have been trying to push the Cancer Council to create more services for Young Adults. Well I have some really good news to share with you today... Annie from the Support Services Department of the CC has just launched the first ever survey specific for us Young Adults affected by cancer. They would like to hear from cancer survivors and carers aged 25 - 40 to find out what you would like to have included in survivorship programs. I would encourage you all to please take some time to fill out the following survey which will assist the Cancer Council for this future program planning. http://www.zoomerang.com/Survey/survey-intro.zgi?p=WEB229VJQLB4ZW May I also encourage you to cut and paste this message into an email and send it to your friends, to help get the word out and get as much information in. You may also like to add a reply in this post of what you thought of the survey, as this may encourage other readers to complete the survey too :) many thanks, Nikki

Nikki_YAC

Hi everyone, As many of you would know, I have been trying to push the Cancer Council to create more services for Young Adults. Well I have some really good news to share with you today... Annie from the Support Services Department of the CC has just launched the first ever survey specific for us Young Adults affected by cancer. They would like to hear from cancer survivors and carers aged 25 - 40 to find out what you would like to have included in survivorship programs. I would encourage you all to please take some time to fill out the following survey which will assist the Cancer Council for this future program planning. http://www.zoomerang.com/Survey/survey-intro.zgi?p=WEB229VJQLB4ZW May I also encourage you to cut and paste this message into an email and send it to your friends, to help get the word out and get as much information in. You may also like to add a reply in this post of what you thought of the survey, as this may encourage other readers to complete the survey too :) many thanks, Nikki

Re: Had cancer, got no friends.

Re: Taking time off

Re: Taking time off

Re: A free Cancer Council NSW Workshop this month ...

Here's a great workshop thats free to go to at th...

Re: Carer

Education program for child, adolescent, and young...

Re: Adolescent and young adult cancer survivors ar...

Cancer Council survey for Young Adults with cancer...

Cancer Council survey for Young Adults with cancer...

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