Gee Nat, I'm a comfort eater and I've put about 10 kilos on!!!! ... View more

Hi, I am sorry to hear of your bad news, makes me feel like expressing myself in an uneducated way SWEARING, but wont get us anywhere. How is your sky this morning in Melbourne, hope its blue for you rarsie ... View more

benefr, I sent you a private message with Ben's email. Have you got it? ... View more

I don't think it's a seizure as he's still had speaking difficulties until now. The doctor said not much we could do. He has increased the dose of dex and hope for the best. ... View more

Hi there, we live in Hopetoun near esperance 6 hours south of perth. My husband had his operation last July the size of a closed fist, how he even worked has amazed me, but he was never to return back to work, what they cut out was his short turn memerory, his problem solveing, and his abilitie to show emotions, he had the 6 week of radiation treatment & chemo, then an mri in dec, seemed to be ok, then continued on chemo tablets every month triple dose, then another mri in feb showed us 4 tumors, and that was that, no further treatment just sent us home with maybe 4 - 6 months, we are doing ok, went to Qld to see all our family and have a holiday in cairns, nearly made it home, he had a minor stroke which cause a major seizure, they pumped in the steriods and after 4 days we could come home, that was 2 weeks ago, he has bounced back ok, but we have him on a slow release morphine patch, as he says he is not in pain, but his face has relaxed so much, when you look at him you wouldn't know he is sick, but sometimes that is the problem, gives you that false sense of hope, but I have found out by reading these bloggs, that every case is different, and I think it is great that some people have good results, but our doctor said to us that was it, so how can you have hope. Gary had his operation at Sir Charles gardiner Hospital. Stay positive and be strong, and don't worry if people don't come around, and they won't, it is all about the two of you, Hope things are good, take care. ... View more

Hi Nat Re loosing - yes its one step closer to her death, then its my grief and all that implies to me spoke again to the oncologist today to get clarity on the outcome - best guess is the drug should increase her life from 2 to 12 months (providing she does not adversely react to the chemo drug) and her quality of life should be better than without it. My bent is that its a appropriate way to go - However the final decision is for Lorraine and I try to be aware of not colouring her mind with my sway, of presenting a unbiased view (i have to read to her,constantly repeat what was said what I said, try to unravel any confusion, try to understand what she says - she talks and words are different to what she wants to say, sometimes she is not aware of what she said...she grows closer to a dementure like state) She is the one to endure the chemo drug and it is her life. Presently she has reasonable cognition on a good day during good minutes, the future will bring its changes and I will make those type of decisions for her, for us and for me. She is a remarkable woman pre and post this tumour she has the knowledge that she is loosing her conscious mind, her decision making, making sense of the world and how she approaches what has been presented. During confusion and forgetfulness she will struggle and gets frustrated for a short period, moves on. Despite her tumour she is more with the present than I, and more detached from the outcome. I flounder at times, although (so far) able to move through my emotions, and rammble She is my teacher. And I wonder of my journey into this lurking world Hugs for your journey Geoff ... View more

Hi Rarsie, The scan result looks kind of promising. The main tumour area is better and the swelling has improved as well. However, there is a spot of 7mm appears on the scan. It wasn't there 5 weeks ago. We'll have to wait and see what it's like in the next scan in 4 weeks time. More fingers crossed!! How's your son doing? ... View more

Hi there, Sorry, can't say much as it's still too early. The second dose is scheduled for tomorrow. There are both up (active, out and about) and down time (no energy the whole day) in the past 3 weeks since the 1st dose. We have an MRI next Monday which will tell us whether the treatment works or not. It seems so early to judge but hope it works (either the tumour stays the same size or smaller). If it doesn't work, that's the end of this treatment. We are very nervous at the moment. 😞 ... View more

Hi Terese, Nop, no carboplatin. The only thing that Dennis has taken since the bad news is Dex and Somac. We were told that to be eligible for a clinical trial (AMG 595 or any other) you have to have only Temodar, nothing else. So Carboplatin and Avastin were out of equation while we explored our options. Nat ... View more

Hi My name is Femme and the mother of Nicole who was diagnosed with an GBM in Jan.2006(aged 34 then) She is doing great after being told after initial diagnosis her prognosis was very grim, 3/9 months they said. She has proved them wrong as to date she is doing so well, she had the surgery, rad. & chemo so I say to you all ....dont ever give up hope. If you want to read Nicole's story go to http://www.btsurvivor.com/bb/viewforum.php?f=7 and look for Nicole Cheers ... View more