Jenni, I sent you a message last night. I have confirmed with Cancer Connect that they have trained volunteers for Cancer of the Vulva. Please give them a call and they can take some details from you and match you up with one of those ladies. With Cancer Connect the only contact you have with each other is when the volunteer contacts you by phone. I am a volunteer with this group for my cancer and find that the ladies that have been referred to me are so pleased to talk to someone that can relate and understand to what you are experiencing. You arrange with the volunteer the best suitable day/or time is best for contact. The phone number is 13 11 20, option 3 and then ask to be transferred to Cancer Connect. Good luck. ... View more

Jenni, Have you tried calling the helpline and asking for cancer connect? I am a volunteer for that, and with this patient is matched up with a trained volunteer that has experienced matters that could be bothering you. No face to face, just a friendly voice over the phone that can understand what you are feeling. Try giving them a call 131120 and ask to be transferred to Cancer Connect. I will contact them tomorrow and ask if they have anyone on file that could possibly help you. What state are you in? ... View more

Hello, I cannot speak of experience with breast cancer or chemo, as I had cancer of the uterus and only needed radiation, both of which are so different to you. There are groups on here. I joined the gyno cancer group and twice a month we have a "live" chat, tonight we are having our first one for the year. If you want to talk to someone, call the helpline 131120 and ask for Cancer Connect. I am also a volunteer for the that. They will take your details and match you up with a volunteer that has experienced the same cancer or treatment. Contact is one on one over the phone and of course - confidential. I am also a volunteer at our local Cancer Council Information Centre, which is part of our local cancer care centre, I speak to people about their cancers, but not directly about mine.I am in NSW. I think personally apart from speaking to your treating doctor or at the centre where you are having treatment, the helpline would be a great start for you. Speaking from personal experience they are really helpful, and the person you speak to on that line is a fully qualified oncology nurse. Hope this helps you. All the best. Please feel free if you want to. ... View more

I have read that the colour is VIOLET for Hodgkins Lymphoma. I will try to find the full list for Monday night. I remember reading that brown is bowel, grey is for brain. I found the colours a few years ago when I was wanting to crochet some rugs for the Relay for Life, I thought I might do them in the colours to match the cancers. ... View more

Thanks ladies. ... View more

Come join our group for gyno cancers. Just look at the top of the first screen and it will show different groups. Find gyno cancers, we also have online chats once a month which is really good for everyone. I survived cancer of the uterus 6 years ago. ... View more

Hello Gaila, Don't feel that you are alone, you are now part of our group, and while you are a part of us you will always have someone to talk to that can understand what you are going through. Hope that your procedure went well. ... View more

In some of the information booklets - Understanding Radiation & also Understanding Chemotherapy there is a pattern. Is there a Cancer Council Information Centre near you? I volunteer at our local CCIC and I have shown lots of ladies the pattern. Good luck with your treatment, you will learn to trust your treatment team. ... View more