Tallypez, it's a huge thing to have a hysterectomy especially at your age. We have to be patient I suppose with people making awkward and thoughtless comments.  It took me a while to accept my diagnosis and prognosis and finally the news that my endometrial cancer had metastasised. I really feel for the young who have to go through all the difficult decisions that have to be made. It's hard for family and friends to understand unless they have gone through it themselves. Su ... View more

Dear Madfisher60. Thank you for messaging me. It is comforting to hear from someone with a similar condition though as I understand it mine didn't metastasize into another organ (eg: liver) so no PRRT required. But this wait and see is stressful as you wonder whether they should be doing something to stop future spread given it did metastasize x 3 micro tumours into my lymph nodes. I was cut wide open this time as a previous surgery left me with incisional hernia and adhesions so the recovery from the NETs surgery has been slow.  Most days I wake up feeling awful. I am on a healthy food and fitness regime but I can't say I feel great. Everyone else in the family who follows my regime look and feel wonderful in days/weeks but I struggle with bloating, cramping, constipation or loose bowels, tension headaches, stomach pins and needles, nausea & mood swings ( get upset easily). If I overdo the exercise I hurt for days where the incision is. The surgeon blames my age ( female therefore menopause) and everyone else says I've had open surgery so don't expect so much! It has been 7 months since the surgery and 12 months since I found out I had NETs. I look forward to the day I start feeling better!! As for the support forum, I reside outside a capital city so the closed online forum sounds good. Thank you for passing this info on and I'm glad you are doing well 8 years post diagnosis 🙂 ... View more

Dear Paul You are right that when a Dr uses the C..... Word things start getting surreal. It is like being on the other side of a line or curtain. Before I was diag in Jan this yr I really had no idea what it really would feel like. I guess now I have to give others a chance to understand even a little but they won't really get it as we do. Being diag on Fri 13 is a bit ironic / freaky. I had an incident on NYE that told me things may be bad so that was freaky / ironic too Know that there really is a big online community here who is with you. I have been very amazed how ppl are so supportive on this site. I decided to join because of no family support and best friend wigging out. I hope you find the support u need among friends, family and here with us fellow journeyers ( is that a word? ) Best wishes GHT ... View more

I have a friend who was diagnosed with that a few years ago. Have you thought of giving 131120 a call and ask for Cancer Connections. I am a volunteer for cancer connections, for that, a patient gives cancer connect their cancer history that they want to discuss. That info is then matched with a volunteer that has experienced similar details, and they are asked to contact the patient by phone. Everything is confidential. Yes, it does help to talk to someone that has experienced something that you are facing. ... View more

Hello, I cannot speak of experience with breast cancer or chemo, as I had cancer of the uterus and only needed radiation, both of which are so different to you. There are groups on here. I joined the gyno cancer group and twice a month we have a "live" chat, tonight we are having our first one for the year. If you want to talk to someone, call the helpline 131120 and ask for Cancer Connect. I am also a volunteer for the that. They will take your details and match you up with a volunteer that has experienced the same cancer or treatment. Contact is one on one over the phone and of course - confidential. I am also a volunteer at our local Cancer Council Information Centre, which is part of our local cancer care centre, I speak to people about their cancers, but not directly about mine.I am in NSW. I think personally apart from speaking to your treating doctor or at the centre where you are having treatment, the helpline would be a great start for you. Speaking from personal experience they are really helpful, and the person you speak to on that line is a fully qualified oncology nurse. Hope this helps you. All the best. Please feel free if you want to. ... View more

I received the frangipani cutting, but unfortunately it got too much rain on it, and it has died.:( 😞 😞 My profile photo is the flower, beautiful isn't it? just like all of us. ... View more

Hi Bev, having just joined cancer connections and trying to find my way around, it was great to come across your happy survivors post! Congratulations for a fantastic outcome!! ... View more

Come join our group for gyno cancers. Just look at the top of the first screen and it will show different groups. Find gyno cancers, we also have online chats once a month which is really good for everyone. I survived cancer of the uterus 6 years ago. ... View more

This site has been a help to me. To be able to talk to people going through the same, has eased the sense of devastation I felt when my wife died of cancer. I realised that although it is a very private journey, the thought that I was not on my own eased my overpowering sense of grief and burden I carry. It is only those people that go on the journey as a sufferer or a carer understand the feelings and depth of emotion that occur when ourselves or a loved one is diagnosed, and what follows. When we are fit and well and we hear of someone in the media or a distant relative getting or dying of cancer, we feel momentarily sad, the thought of it stays with us for a short time, then we get on with our lives. We have little or no emotional attachment to that person. Cancer happens to other families, not ours When it hits us personally, it stays with us for the rest of our lives. I never in my life thought I would be on the receiving end of the words, "if there is anything I can do". To be able to give advice from experience or write a few reassuring words to people going through the dreadful same, knowing we are not in the darkness on our own, to be able to talk to people who understand, would be difficult without this site. wombat4 ... View more

Try calling Cancer Connect 131120. With Cancer Connect they match you up with a trained Peer Support Volunteer. These volunteers (I am one of them) have experienced the same cancer, treatment, or other problems you might have. ... View more