May 2012
Hi Tina. Please dont be disappointed in yourself for the way you feel. Like I was told by my psychologist once, no feelings are silly, they are real to the person experiencing them, and we feel them all for a reason.
Although there may be people in far worse situations out there, any kind of cancer is horrific. While some are more dangerous or more traumatic than others, this is still the worst thing you've ever experienced and you have every right to feel how you do.
... View more
May 2012
My granfather was fit and strong, never smoked, never drank except for the occasional glass of red wine, had home cooked nuritious meals every night, and still developed glioblastoma. Never had any health problems in 75 years before this except a mild case of pneomonia, one kidney stone and sleep apnea. The only thing possibly that I can think of that could have contributed to it is that he worked at the steel works...not in the actual production though. pollution maybe? not sure, just speculation.
Even now he's still completely healthy...except of course for brain cancer. Even though he lost a lot of weight in week leading up to his surgery (proably stress/nerves) he's still as strong as ever (which we discovered last night as he was trying to rip off his monitoring equipment!!)
A very harsh reminder that cancer can happen to anyone 😞
... View more
May 2012
hi dotty, of course you can share it with them...i hope it helps 🙂 my cousin is 14 and really not coping well :(
I find writing about my problems very therapudic, things make so much more sense written down than swirling around in my brain lol.
All my best to you, your grandsons and your husband.
... View more
May 2012
thank you 🙂 i appreciate it. Its all very new for us...he's had noticeable symptom for about 3 weeks, found out he had 'something in his brain' last week, was diagnosed with Glioblastoma on monday, and had surgery on thursday. So its all been very quick! Still hasnt really sunk in... We're at hospital with him now, he's doing ok medically wise, but he's very distressed and agitated, trying to pull things off left right and centre, had to be restrained at one point 😞 I'm not even thinking about the fact that we're going to lose him at the moment, all i can think of is how terrible he must feel :(
Let us know how the MRI went 🙂
... View more
May 2012
so im sitting in hospital now with my grandfather who had a craniotomy on thursday. He's a total mess...cant speak, struggles to communicate, paralysed down his left side... Doesnt look like himself at all. He's extremely agitated, keeps trying to rip off equipment, even ripped off his whole bandage at one stage leaving his wound exposed. He's too strong to stop him so they've had to restrain him by tying his good arm to the bed. He alternates between tapping his hand against the bed to tell us he wants it off with this horrible devastated look in his eye, and struggling with all his might to get free. Obviously being restained is distressing him a lot and we really need to get him to sleep...but when he's out of the restraint he keeps pulling his oxygen mask off and his levels get too low...they've given him tonnes of morphine and some mild sedatives but nothings working, he just keeps fighting it off. We're trying to reassure him, hold his hand but he just keeps pushing us away, hitting us as best he can or squeezing with all his might intil its painful. He bent my auntys thumb as far back as he could when she was trying to comfort him and wouldnt let go. Its breaking my heart, i just wish there was something we could do 😞
... View more
May 2012
Im so glad I found this site...the level of support is amazing. Hearing other peoples stories gives me so much hope. Before my grandfather was diagnosed I was not in a good place mentally...I was very fragile, and felt like if anything else happened I would completely lose it. But I have actually been ok...you really don't know how strong you are until you have to be. The strength and positive attitude that people on these forums have is amazing, a real testament so just how strong the human spirit really is.
... View more
May 2012
Hi, I'm from Sydney, but my grandfather was recently diagnosed with grade 4 GBM, so I've been doing a lot of reading up on the subject...it is very scary stuff! I felt sick to my stomach when I typed it into google and a page came up nicknaming it 'the terminator' :(
I'm glad to hear you're hanging on to your HOPE! Its early days for us so we're just trying to take it one hurdle at a time...
All my best to you and hubby 🙂
... View more
May 2012
Hi Allicat,
I was on pristiq for roughly 12 months. I too was sick of being on medication! its an incredibly awkward, uncomfortable feeling...you know what you should be or normally would be feeling, but you cant feel it. I had a few situations where I just wanted to cry so badly, I knew it would make me feel better but I just couldnt! so frustrating. It blocked out all the good emotions too 😞
I quit cold turkey (dont do this unless doc gives permission!!) and was realllyy depressed for about 3 or 4 days after stopping. It wasn't really agonising depression, more lay in bed all day cant be bothered to even shower depression. no motivation at all. anxiety was playing up a bit but keeping myself occupied on computer or sleeping was enough to keep it at bay. After a week I felt ok and after about 3 weeks I felt absolutely amazing and back to my old self again! :)
If you/your doc dont think you're ready to wean off them then maybe see if they can swap you to a weaker dose or different meds?
Hope all is well!
... View more
- « Previous
- Next »
