February 2017
Hi Sandrab, I hope you are recovering. I can relate to what you are saying as I was diagnosed with Stage 3a cancer in August 2015. t started in my right lung, After 7 all day chemo sessions and 30 radiotherapy sessions I improved to the point of being able to walk up to 6Km a day. Then in early May 2016 I was diagnosed with an inoperable brain tumour. That required 10 more whole brain radiotherapy sessions which stopped the growth of the tumour but wiped me out for 5 months, then the cancer became active in my right lung again. Now it's stage 4 and I am being treated with "Nivolumab" every 2 weeks intraveniously (going on 4 months now) and it has been life-changing. With the exception of some lingering fatigue I feel better than I have in 12 months. Have you asked your Oncologist about this treatment and if it is relevant to you? And yes, so important to stay positive and keep fighting!
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May 2014
Hi guys, some of you may remember me from a couple of years ago, when my grandfather was fighting his losing battle with GBM
Tomorrow will mark 2 years since he passed away, and I've been reflecting on it a lot over the past couple of weeks, and I seriously have no idea how I would have coped if it wasn't for this wonderful community.
It was more than his illness, I had been struggling to cope with life in general long before he was diagnosed. Seeing the emotional strength that you all display to keep fighting even when every day is a battle, to find moments of happiness in the darkest of days, and to hold on to your hope no matter what life throws your way inspired me and changed my life completely.
Next time you feel exhausted, or frustrated, or blue, just remember... you are amazing 🙂
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June 2013
Hi, so sorry to hear about your husband. I lost my grandfather to GMB last year, he never recovered from his craniotomy so did not have chemotherapy or radiation. I've written quite a lot on here about my experience with him, if you go to my profile you'll probably be able to find it all 🙂
Best of luck xo
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September 2012
All the best with your recovery . It won't be easy ,but worth it .
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July 2012
tiki91
I can't begin to understand the feelings of not only grief but a terrible despair of what you observed happening to your grandfather in the final stages of his illness.
however I to am a grandfather also suffering cancer but I can truly say I enjoy the pleasure of my teenage grandchildren around me and the love and compassion they show to me during this time, we always say I love you.
Know that he would have been extremely proud for the sacrifices you made and the great enjoyment and love you gave him during his illness and lifetime. Keep those memories of him forever in your heart as long as his memories are in your heart he lives on with you forever.
I am extremely glad that you are seeing a psychologist you need to completely open up about your feelings, sights and thoughts you are having at this very emotional and trying time.They will hopefully show you the tools you need to help you cope. I am sitting here and shed a quiet tear for you after reading your post for what you are enduring best wishes
kj
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May 2012
Well done to all
The clouds have gone and once more the sun has come out and is shining on you.
Wombat4
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May 2012
http://clearstudy.org.au/
The above link is to a research study run by Cancer Council NSW that looks into the lifestyle and environmental factors contributing to cancer.
The study involves a questionaire that can be completed either online or by a mail pack. They are also requesting blood samples (optional).
Participants must be over 18, reside in NSW and have been diagnosed with cancer for the first time in 18 months. They are also asking for partners to participate. I know that it will not be applicable to all of you, but if you are eligible I urge you to participate!! They need thousands of people to take part in order to get accurate results. Think of it as your chance to fight back against this horrible disease.
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May 2012
My doctor once said to me it's 2 steps forward and one step back (or it may have been 3 forward and 1 back ). That seems to be how it is for your grandfather. One day at a time is all you can do and rejoice in the good things . Glad there are good things amongst this terrible thing.
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May 2012
so im sitting in hospital now with my grandfather who had a craniotomy on thursday. He's a total mess...cant speak, struggles to communicate, paralysed down his left side... Doesnt look like himself at all. He's extremely agitated, keeps trying to rip off equipment, even ripped off his whole bandage at one stage leaving his wound exposed. He's too strong to stop him so they've had to restrain him by tying his good arm to the bed. He alternates between tapping his hand against the bed to tell us he wants it off with this horrible devastated look in his eye, and struggling with all his might to get free. Obviously being restained is distressing him a lot and we really need to get him to sleep...but when he's out of the restraint he keeps pulling his oxygen mask off and his levels get too low...they've given him tonnes of morphine and some mild sedatives but nothings working, he just keeps fighting it off. We're trying to reassure him, hold his hand but he just keeps pushing us away, hitting us as best he can or squeezing with all his might intil its painful. He bent my auntys thumb as far back as he could when she was trying to comfort him and wouldnt let go. Its breaking my heart, i just wish there was something we could do 😞
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